对镰状细胞病患者的了解以及对布瓦科伊大学医院眼科监测的态度和做法(Côte科特迪瓦)

Yves Ouattara, Zana Diabaté, Thierry Yves Constant Sowagnon, Liliane Ella Godé, Mani Eric Omer Armand Digbé
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摘要

镰状细胞病是一种潜在致盲的血红蛋白病。本研究的目的是评估镰状细胞病患者对该病及其眼部并发症的知识、态度和做法对他们坚持进行镰状细胞病眼科监测的影响。材料和方法:横断面研究,系统招募在研究期间在bouak大学医院门诊部因任何原因接收的镰状细胞患者。结果:50例年龄8 ~ 71岁的镰状细胞病患者(平均28.12岁)中,男性占52%。小学生和学生占多数(60%),来自城市地区的患者占92% (n=46)。高学历和中等学历患者分别占42.00% (n=21)和40.00%。AS型和SC型最常见,分别占34% (n=17)和42% (n=21)。不知道镰状细胞病是否会造成眼部损害的占52.00% (n=26),在表示知道的21人(42%)中,不知道镰状细胞病累及眼部致盲的占15人(71.43%)。在镰状细胞病患者的疾病随访中,有74.00% (n=37)从未咨询过眼科医生,其中33人(89.19%)确认从未开过监测咨询。结论:镰状细胞病患者健康教育不到位,影响了镰状细胞病患者坚持眼科监测和预防镰状细胞病致盲。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Knowledge of sickle cell patients and attitudes and practices relating to the ophthalmological monitoring at the University Hospital of Bouaké (Côte d’Ivoire)
Introduction: Sickle cell disease is a potentially blinding haemoglobinopathy. The aim of this study was to assess the impact of the knowledge, attitudes and practices of sickle cell patients relating to the disease and its ocular complications on their adherence to ophthalmological monitoring of sickle cell disease. Material and methods: Cross-sectional study by systematic recruitment of sickle cell patients received for any reason, in the outpatient department of the Bouaké University Hospital, during the study period. Results: Out of 50 sickle cell patients aged from 8 to 71 years (average of 28.12) the male accounted for 52%. Pupils and students were predominant (60%) and the patients from urban areas represented 92% (n=46). The patients with a high level and secondary level of education represented respectively 42.00% (n=21) and 40.00%. The AS forms and the SC forms were the most represented with respectively 34% (n=17) and 42% (n=21). Those who did not know if sickle cell disease could cause ocular damages represented 52.00% (n=26) and among the 21 (42%) who said they knew, those who did not know that the disease could be blinding by its ocular involvement were 15 accounting for (71.43%). The sickle cell sufferers who had never consulted an ophthalmologist as part of the follow-up of the disease represented 74.00% (n=37) and among them, 33 (89.19%) affirmed that the monitoring consultation had never been prescribed to them. Conclusion: Poor health education of the sickle cell patients is an obstacle to their adherence to the ophthalmological monitoring and the prevention of blindness due to sickle cell disease.
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