“这比我想象的要困难得多”:为帕金森氏症患者组建一个歌唱小组

Pub Date : 2020-05-01 DOI:10.1386/ijcm_00009_1
Melissa Forbes, Irene Bartlett
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引用次数: 5

摘要

一项以大学为基础的国际研究项目调查了定期歌唱团体活动对帕金森病患者的影响,为捕捉澳大利亚歌唱团体的三位主持人的生活经验提供了一个独特的机会。采用现象学方法,通过主持人对歌唱小组活动的反思日志以及他们在大型研究项目结束时的研讨会上的口头报告收集数据。数据分析揭示了三位引导者所描述的技能和属性以及他们所经历的挑战。结果表明,围绕语音功能知识和对帕金森病患者所面临的身体和情感挑战的认识进行有针对性的技能培训,可以帮助辅导员制定最佳实践干预措施。
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‘It’s much harder than I thought’: Facilitating a singing group for people with Parkinson’s disease
A university-based, international research project investigating the effects of regular singing group activities for people with Parkinson’s disease provided a unique opportunity to capture the lived experience of three facilitators of Australian-based singing groups. Using a phenomenological approach, data were collected via facilitators’ reflective journals of singing group activities together with their oral reports at a symposium at the conclusion of the larger research project. Data analysis revealed the skills and attributes described by the three facilitators and the challenges they experienced. Results indicate that targeted skills training around a knowledge of voice function and awareness of the physical and emotional challenges faced by people with Parkinson’s disease could assist facilitators to develop best practice interventions.
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