Pamela Haibach-Beach, Melanie Perreault, Lauren Lieberman, Alexandra Stribing
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Associations Between Parent Perspectives and Motor Competence in Children With CHARGE Syndrome
Children with CHARGE syndrome, an extremely complex, highly variable genetic disorder, are significantly delayed in the onset of their motor milestones in comparison with children without disabilities due to sensory and motor deficits as well as lengthy hospitalizations and reduced physical activity. Currently, the role of parents’ perceptions and participation in the motor development of their child with CHARGE is unknown. The purpose of this study was to examine the associations between parents’ perceptions and their child’s motor competence, comparing parents of children with and without CHARGE syndrome. Participants included 33 children with CHARGE and 38 children without disabilities. Parents completed the Child’s Movement Skills Research parent survey and children were assessed on their gross motor skills. Parental ratings of locomotor ability and time spent participating with their child predicted the locomotor, ball skill, and total motor skill scores in the CHARGE group. Control group parents’ rating of ball scores predicted ball skill and total skill scores. The results indicate that parents may play an important role in their child with CHARGE syndrome’s motor development. Parents who are more involved with their child’s movement activities can positively influence their motor competence.
期刊介绍:
The Journal of Motor Learning and Development (JMLD) publishes peer-reviewed research that advances the understanding of movement skill acquisition and expression across the lifespan. JMLD aims to provide a platform for theoretical, translational, applied, and innovative research related to factors that influence the learning or re-learning of skills in individuals with various movement-relevant abilities and disabilities.