A. S. M. Nurunnabi, Sadia Akther Sony, Munira Begum, S. Sharmin, F. Haseen, Md Kamran Ul Baset
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引用次数: 0
摘要
通过发展中国家和发达国家之间的合作,研究活动的多国性质日益增加。然而,迄今为止,在西方当局以合作、发展或改善健康的名义在不同发展中国家进行的这类研究中,特别是在知情同意和对参与者的保护方面,已经报告了一些丑闻。这些事件往往造成不信任,并可能导致发展中国家在进一步合作中采取不合作的态度。本文旨在讨论知情同意在多大程度上是真正知情的,以及社区参与如何通过尊重任何社会(即参与的发展中国家)的价值观使其更有意义和道德。有证据表明,在合作研究中,同意过程和社区参与之间存在着本质上的相互依存和重叠。社区参与能够提供有意义的见解,有助于制定具体情况的同意程序。它还有助于规范和监督同意程序、退出参与以及研究进行中的任何相关变化。此外,作为对参与研究的群体表示尊重的一种标志,社区参与已被发现有助于使研究更容易被接受和互利。中华医学杂志2023 July . 12卷02期,第192-200页
Informed Consent through Community Engagement in Collaborative Research in Developing Countries
Multinational nature of research activities has been growing increasingly through collaboration that involves a developing country and a developed country. However, several scandals have been reported to date in such research done by the western authorities in the name of collaboration, development, or health improvement in different developing countries especially revolving informed consent and protection of the participants. Those incidences tend to create distrust and may result in non-cooperative attitude among developing countries in further collaboration. This paper aims to discuss how much an informed consent is really informed and how community engagement can make it more meaningful and ethical by respecting the values of any society (i.e., participating developing country). Evidence suggests that there are essential interdependence and overlapping between consenting process and community engagement in that collaborative research. Community engagement is able to provide a meaningful insight that helps in formulation of context-specific consent process. It also helps to regulate and monitor consenting procedure, withdrawal from participation, and any relevant changes while research is ongoing. Moreover, as a sign of showing respect to the participating group in research, community engagement has been found instrumental in making research more acceptable and mutually beneficial.
CBMJ 2023 July: Vol. 12 No. 02 P: 192-200