Esmeralda Casas-Silva, L. Agrawal, H. Ellis, Veena Gopalakrishnan, P. Guan, M. Jensen, Natalie Madero, S. McDermott, J. McLean, Abhi Rao, James Suh, J. Wanyiri, C. Weil, Mickey Williams, Helen M. Moore
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引用次数: 1
摘要
美国国家癌症研究所(NCI)癌症登月生物样本库(Biobank)旨在通过收集被诊断为晚期癌症并在NCI社区肿瘤研究计划(NCORP)参与的地点接受标准护理治疗的参与者捐赠的纵向生物标本和健康数据，加速癌症治疗耐药性和敏感性的研究。参与者和提供者的参与是生物银行的核心原则。因此，我们创建了一个创新的网站，直接与参与者和提供者进行交互，以实现我们的参与目标，即为利益相关者提供价值回报，透明运作，保持双向沟通，并招募代表美国的多样化人群，包括种族/少数民族，农村人口和其他历史上在临床研究中代表性不足的人群。生物银行参与网站有几个功能，旨在为利益相关者提供价值回报。这包括关于项目的明确信息，关于如何在研究中使用生物标本和数据的透明度，以及访问和下载诸如临床生物标志物测试和签署同意书等文件的能力。该网站还包括项目更新、参与者和提供者资源以及教育材料。癌症登月生物银行参与者和提供者参与网站是生物银行与其利益相关者之间的重要接口。它的最终目标是促进项目参与，并为参与者和提供者回报价值。引文格式:Esmeralda Casas-Silva、Lokesh Agrawal、Helena J. Ellis、Veena Gopalakrishnan、Guan Ping、Mark Jensen、Natalie Madero、Sean McDermott、Jeffrey McLean、Abhi Rao、James Suh、Jane Wanyiri、Carol J. Weil、Mickey Williams、Helen M. Moore通过NCI Cancer Moonshot Biobank患者和提供者参与网站促进生物银行和研究的参与[摘要]。见:美国癌症研究协会2021年年会论文集;2021年4月10日至15日和5月17日至21日。费城(PA): AACR;癌症杂志，2021;81(13 -增刊):2632。
Abstract 2632: Fostering engagement in biobanking and research through the NCI Cancer Moonshot Biobank patient and provider engagement website
The National Cancer Institute9s (NCI) Cancer Moonshot Biobank (the Biobank) aims to accelerate cancer research on treatment resistance and sensitivity through collection of longitudinal biospecimens and health data donated by participants diagnosed with late-stage cancer and receiving standard of care therapy at participating NCI Community Oncology Research Program (NCORP) sites. Participant and provider engagement are a central tenet of the Biobank. We therefore created an innovative website to interface directly with participants and providers and to meet our engagement goals of returning value to stakeholders, operating with transparency, maintaining bi-directional communication, and enrolling a diverse population that represents the U.S. including racial/ethnic minorities, rural populations and others that are historically underrepresented in clinical research. The Biobank engagement website has several features designed to provide return of value to stakeholders. This includes clear information about the program, transparency about how biospecimens and data will be used in research, and the ability to access and download documents such as clinical biomarker tests and signed consent forms. The website also includes project updates, participant and provider resources, and educational material. The Cancer Moonshot Biobank Participant and Provider Engagement website serves as an important interface between the Biobank and its stakeholders. Its ultimate aim is to facilitate project engagement and return value to participants and providers. Citation Format: Esmeralda Casas-Silva, Lokesh Agrawal, Helena J. Ellis, Veena Gopalakrishnan, Ping Guan, Mark Jensen, Natalie Madero, Sean McDermott, Jeffrey McLean, Abhi Rao, James Suh, Jane Wanyiri, Carol J. Weil, Mickey Williams, Helen M. Moore. Fostering engagement in biobanking and research through the NCI Cancer Moonshot Biobank patient and provider engagement website [abstract]. In: Proceedings of the American Association for Cancer Research Annual Meeting 2021; 2021 Apr 10-15 and May 17-21. Philadelphia (PA): AACR; Cancer Res 2021;81(13_Suppl):Abstract nr 2632.
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