门诊治疗中的癫痫过渡:癫痫过渡小组的经验和益处

IF 0.2 Q4 PEDIATRICS
Amisha G Patel, S. Jan, C. Steinway, Alex F. Bullock, Adam Greenberg, Bethany Thomas, Lawrence Fried, L. Brown, Marissa Digiovine
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引用次数: 1

摘要

癫痫是第四大最常见的神经系统疾病,影响所有年龄段的人;然而,至少有40%的儿童在成年后仍会癫痫发作。患有癫痫的儿童和青少年(CYE)会经历神经系统和外神经系统的变化,这些变化会对最佳成人功能所必需的自我管理技能产生负面影响。那些有智力障碍的人有额外的过渡挑战。改善所有青少年青少年的医疗过渡过程是至关重要和必要的。在这篇文章中,我们将回顾一些生物学、行为学、心理学、治疗和社会因素对CYE复杂过渡的影响。然后,我们将描述将CYE过渡到成人护理的一般方法,特别是涉及创建具有总体过渡目标的框架的方法,并分享我们在费城儿童医院实施这些方法的经验。我们对正式过渡政策、团队结构和持续评估的综合模型支持CYE过渡到成人护理,这是一个可以整合到临床护理中的实用程序。对过渡进程的适当投资将为所有有关方面带来可衡量的重大长期利益。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Epilepsy Transition in Ambulatory Care: Experiences and Benefits of an Epilepsy Transition Team
Abstract Epilepsy is the fourth most common neurological disorder and affects people of all ages; however, at least 40% of children will continue to have seizures into adulthood. Children and youth with epilepsy (CYE) experience neurologic and extraneurologic changes that can negatively impact self-management skills necessary for optimal adult function. Those with intellectual disability have additional transition challenges. Improving the medical transition process for all CYE is vital and necessary. In this article, we will review some of the biologic, behavioral, psychologic, therapeutic, and social considerations for CYE complicating transition. We will then describe general approaches to transitioning CYE to adult care, specifically methods involving creating a framework with overarching transition aims in place, and share our experience at the Children's Hospital of Philadelphia implementing these approaches. Our comprehensive model for a formal transition policy, team structure, and ongoing assessment supporting CYE transitioning into adult care is a practical program that can be integrated into clinical care. Proper investment in the transition process will translate into measurable, significant long-term benefits for all involved.
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来源期刊
自引率
0.00%
发文量
21
期刊介绍: The Journal of Pediatric Epilepsy is an English multidisciplinary peer-reviewed international journal publishing articles on all topics related to epilepsy and seizure disorders, epilepsy surgery, neurology, neurosurgery, and neuropsychology in childhood. These topics include the basic sciences related to the condition itself, the differential diagnosis, natural history, and epidemiology of seizures, and the investigation and practical management of epilepsy (including drug treatment, neurosurgery and non-medical and behavioral treatments). Use of model organisms and in vitro techniques relevant to epilepsy are also acceptable. Journal of Pediatric Epilepsy provides an in-depth update on new subjects and current comprehensive coverage of the latest techniques used in the diagnosis and treatment of childhood epilepsy.
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