通过网络搜索获取智力残疾成年人的健康信息

IF 3.1 3区 管理学 Q2 COMPUTER SCIENCE, INFORMATION SYSTEMS
Theja Kuruppu Arachchi, Laurianne Sitbon, Jinglan Zhang, Stewart Koplick, Maria Hoogstrate, M. Brereton
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引用次数: 0

摘要

目的:本研究探讨了智力残疾成人目前和期望使用网络搜索的情况,特别是对健康信息的使用。设计/方法/方法作者调查了39名参与者,他们在澳大利亚的支持就业或在日托中心工作。这项通过结构化访谈进行的调查,以参与者叙述的形式增加了数据的参与度。通过主题分析的形式来分析这些回应。本研究的结果显示了参与者对日常健康信息的兴趣,寻找信息的方法和对自给自足的期望。参与者感兴趣的是保持健康的信息,而不是纯粹的临床信息。参与者热衷于使用在线信息,既方便又有趣,吸引人。支持与参与者关系密切的其他人是参与者获取健康信息的主要意图。参与者希望学习如何搜索,表现出对自主生活的渴望。研究的局限性/启示本研究的发现为消费者健康信息的获取提供了一些途径,无论是从无障碍设计的角度还是从学习和支持的角度来看,都尊重和包容智障用户。原创性/价值本研究补充了其他人机交互(HCI)研究,这些研究观察了如何支持智力残疾的成年人参与网络搜索;本研究提供了成人希望如何与网络搜索健康信息互动的语言观点,并根据成人的现有能力和支持需求进行了细致入微的分析。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Web search to access health information by adults with intellectual disability
PurposeThis study explored the current and desired use of web-search, particularly for health information, by adults with intellectual disability.Design/methodology/approachThe authors surveyed 39 participants who were in supported employment or attending day centers in Australia. The survey, delivered through structured interviews, increased participation with data in a form of the participants' narratives. The responses were analyzed through a form of thematic analysis.FindingsThis study's results present the participants' daily health information interests, approaches to finding information and expectations for self-sufficiency. Participants' interest was in information to stay healthy rather than purely clinical information. The participants were keen to use online information in, accessible as well as entertaining and engaging formats. Supporting others close to the participants was the prominent intention of participants' health information access. Participants showed aspirations for an autonomous life by wanting to learn how to search.Research limitations/implicationsThe findings of this study provide some avenues for consumer health information access to be respectful and inclusive of users with intellectual disability, both from an accessible design perspective as well as from a learning and support standpoint.Originality/valueThis study complements other human–computer interaction (HCI) studies which observe how adults with intellectual disability can be supported to engage with web search; this study offers the adults' verbalized perspectives on how adults wish to interact with web searching for health information, nuanced by adults' existing abilities and support needs.
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来源期刊
Online Information Review
Online Information Review 工程技术-计算机:信息系统
CiteScore
6.90
自引率
16.10%
发文量
67
审稿时长
6 months
期刊介绍: The journal provides a multi-disciplinary forum for scholars from a range of fields, including information studies/iSchools, data studies, internet studies, media and communication studies and information systems. Publishes research on the social, political and ethical aspects of emergent digital information practices and platforms, and welcomes submissions that draw upon critical and socio-technical perspectives in order to address these developments. Welcomes empirical, conceptual and methodological contributions on any topics relevant to the broad field of digital information and communication, however we are particularly interested in receiving submissions that address emerging issues around the below topics. Coverage includes (but is not limited to): •Online communities, social networking and social media, including online political communication; crowdsourcing; positive computing and wellbeing. •The social drivers and implications of emerging data practices, including open data; big data; data journeys and flows; and research data management. •Digital transformations including organisations’ use of information technologies (e.g. Internet of Things and digitisation of user experience) to improve economic and social welfare, health and wellbeing, and protect the environment. •Developments in digital scholarship and the production and use of scholarly content. •Online and digital research methods, including their ethical aspects.
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