尼日利亚拉各斯一家二级医院SCD患儿护理人员的SCD知识和心理社会负担——一项横断面研究

IF 0.2 Q4 MEDICINE, GENERAL & INTERNAL
Adedoyin Fetuga, M. Balogun, A. Akinsete
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引用次数: 0

摘要

背景:镰状细胞性贫血(SCA)是世界上最常见的遗传性疾病,也是镰状细胞性疾病中最严重的一种。SCA患者会出现许多社会心理问题。SCA临床状态的严重程度对患者及其亲属施加了不同程度的痛苦,这些患者的整体健康取决于护理者的生活质量和心理准备。本研究评估了镰状细胞病(SCD)的知识和疾病对护理人员的社会心理负担。方法:这是一项在梅西街儿童医院进行的横断面研究。在获得同意后,调查采用了由访谈者管理的结构化形式。这项研究得到了卫生、研究和伦理委员会的批准,并得到了拉各斯州卫生服务委员会的许可。使用Epi Info™7.140分析数据。结果:调查对象216人,平均年龄37.7±7.8岁。大多数受访者为女性(90.7%),目前已婚(90.7%)。平均知识得分为7.5±2.1分,大部分(74.1%)受访者知识水平较好。绝大多数受访者因花时间照顾孩子而失去收入或经济利益(91.2%),并报告说孩子的疾病扰乱了家中的活动(77.3%)。几乎所有(96.8%)的人报告说,由于孩子的疾病,家中气氛紧张,80.6%的人报告抑郁和感到悲伤,34%的人对自己或孩子感到愤怒,14.3%的人因孩子的疾病而感到耻辱。调查对象的受教育程度、性别、年龄、与儿童的关系和对SCD的认识之间存在统计学上显著的关联,而那些对SCD有良好认识的人没有破坏家庭互动的比例更高。结论:大多数获得SCD儿童护理的护理人员对疾病有很好的了解,并且在财务、家庭常规和家庭互动方面经历了不同程度的破坏。建议护理人员提高对SCD的认识,以减轻社会心理负担,特别是与家庭互动有关的社会心理负担。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Knowledge of SCD and psychosocial burden experienced by caregivers of children with SCD at a secondary level hospital in Lagos, Nigeria - A cross sectional study
Background: Sickle cell anemia (SCA) is the most prevalent genetic disease in the world and the most severe of the sickle cell disorders. Individuals with SCA undergo numerous psychosocial problems. The severity of the clinical status of SCA imposes differing degrees of suffering to patients and their relatives, and the overall health of these patients depends on the quality of life and psychological preparedness of the caregivers. This study assessed the knowledge of sickle cell disease (SCD) and the psychosocial burdens of the disease on caregivers. Methods: This was a cross-sectional study conducted at Massey Street Children Hospital. Following consent, an interviewer-administered structured pro forma was utilized for the survey. The study was approved by the Health, Research, and Ethics Committee with permission from the Lagos State Health Service Commission. Data were analyzed using Epi Info™ 7.140. Results: Two hundred and sixteen respondents were interviewed with a mean age of 37.7 ± 7.8 years. Most of the respondents were female (90.7%) and presently married (90.7%). The mean knowledge score was 7.5 ± 2.1, with most (74.1%) of the respondents having good knowledge. The vast majority of respondents had lost income or financial benefits due to time spent caring for the child (91.2%) and reported that a child's illness disturbs activities at home (77.3%). Almost all (96.8%) reported an atmosphere of tension in the homes due to a child's illness, 80.6% reported episodes of depression and feeling sorrowful, 34% felt angry with self or child, and 14.3% felt stigmatized because of child's illness. There was a statistically significant association between respondents' level of education, gender, age, relationship to a child, and knowledge of SCD, and a higher proportion of those with good knowledge had no disruption of family interactions. Conclusion: Majority of the caregivers accessing care for children with SCD had good knowledge of the disease and experienced varied degrees of disruption in their finances, family routine, and family interaction. Improving knowledge of SCD is recommended among caregivers to alleviate psychosocial burdens, especially those associated with family interactions.
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来源期刊
Journal of Clinical Sciences
Journal of Clinical Sciences MEDICINE, GENERAL & INTERNAL-
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45 weeks
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