渴望与你相见:面对死亡与病患风格

Matt Stolick
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引用次数: 1

摘要

本文旨在强调在提供生存估计时存在预后不确定性,同时也为那些想要真正帮助垂死病人的人提供一种照顾方法。面对自己的死亡有助于一个人真诚而富有同情心地陪伴垂死的病人。认识到一个人生活在一个故事中,死亡必然是其中的一部分,死亡的转变体验对一个人作为人的自我至关重要,有望克服对垂死病人否认死亡存在意义的倾向。这种倾向表现为对医学在创造预后方面的局限性的不诚实,特别是对生存估计的不诚实,以及只坚持治疗而不是缓解治疗的目标。这种倾向将被诚实和真实的同情行为所取代,这些行为将在死亡过程中发生。代表这种变化的是对病人作为人的关注,过着某种生活方式,并通过过去、现在和未来的重大事件和关系来定义自己。死亡和濒死通过融入病人的故事和风格而变得有意义。这种意义是由护理人员促成的,是由患者创造的,是实现“善终”的核心。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Dying to meet you: Facing mortality and enabling patient styles
This paper is intended to emphasize the existence of prognostic uncertainty in providing survival estimates while also providing a method for caring to those who want to authentically help dying patients. Facing one’s own mortality helps one authentically and compassionately be there for dying patients. The transforming experience of death as essential to one’s self as human being, recognizing that one is living a story with death necessarily a part, promises to overcome the tendency to deny the existential meaning of death for dying patients. This tendency manifests itself through dishonesty about medicine’s limitations in creating prognoses, and specifically survival estimates, as well as in holding only a curative and not palliative goal of treatment. This tendency will be replaced by honest and authentic compassionate actions with those in the process of dying. Representing this change is a focus on the patient as person, living a certain lifestyle, and defining himself by significant events and relationships in the past, present, and future. Death and dying become meaningful through incorporation into the story and style that is the patient. This meaning that is facilitated by caregivers and created by patients is central to achieving a “good death.”
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