社区环境中家庭照顾者生活质量的预测因素:乳腺癌和宫颈癌的影响

Ni Putu Wulan Purnama Sari, Agustina Chriswinda Bura Mare
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摘要

背景:晚期疾病患者由家人在家照顾的趋势越来越明显。在全球范围内,越来越多的政府政策促使护理人员、家庭和社区参与到医疗保健服务系统中来。家庭照护者(FCG)已经承担了在家照顾患病亲人的日常责任。癌症诊断对于被诊断的人以及他或她的家人和照顾者来说都是一件大事。护理活动对FCG的生活质量(QOL)有显著影响。本研究旨在分析社区环境下女性癌症患者FCG生活质量的最佳预测指标。方法:采用一阶段整群随机抽样的方法,选取印度尼西亚泗水市(7.94%)63家公共卫生中心(PHCs)中的5家进行横断面研究。参与本研究的女性癌症患者FCGs共60例(n = 60)。护理者生活质量-癌症(CQOLC)是一个有效和可靠的工具,用于收集数据。资料分析采用线性回归和单因素方差分析(α < 0.05)。道德许可被签发。结果:受访者多为中年已婚男性,有良好的教育背景,仍在积极工作,收入充足。他们的生活质量大多处于中等水平(Mean±SD = 62.57±16.23)。负担(p < 0.000)、破坏性(p = 0.001)和财务担忧(p < 0.000)在低、中、高FCG生活质量之间存在显著差异。社区环境下女性癌症患者FCG生活质量的最佳预测因子是破坏性(R2 = 0.622;p < 0.000)与负担相比(R2 = 0.531;p < 0.000)和财务担忧(R2 = 0.184;p = 0.001),特别是当其他家庭成员没有表现出照顾的兴趣时(R2 = 0.539;P < 0.000)。结论:社区女性肿瘤患者FCG的生活质量处于中等水平。干扰、负担和财务问题可以显著预测FCG的生活质量。其他家庭成员对照顾不感兴趣是社区环境中女性癌症患者FCG生活质量的最佳预测因子,占该人群生活质量方差的53.9%
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Predictors of Quality of Life of Family Caregiver in A Community Setting: Breast and Cervical Cancer Impacts
Background: There is a growing trend for those with a terminal illnesses to be cared for by their families at home. Globally, there is a growing governmental policy to engage caregivers, families, and communities in the healthcare delivery system. Family caregivers (FCG) have taken responsibility for the day-to-day care of their ill loved ones at home. A cancer diagnosis is a major event for the person diagnosed and also for his or her family and caregivers. The caregiving activity has a significant impact on FCG’s quality of life (QOL). This study aimed to analyze the best predictor of FCG’s QOL of female cancer patients in a community setting.Methods: This cross-sectional study involved five Public Health Centers (PHCs) among 63 PHCs in Surabaya (7.94%), Indonesia, which were selected by one-stage cluster random sampling. There were 60 FCGs of female cancer patients who participated in this study (n = 60). The Caregiver Quality of Life – Cancer (CQOLC) was a valid and reliable instrument that was used to collect the data. Linear regression and one-way ANOVA tests were used in data analysis (α < .05). Ethical clearance was issued.Results: Most respondents were middle-aged married men with sufficient educational background and still actively working with sufficient income. Their QOL was mostly at a moderate level (Mean ± SD = 62.57 ± 16.23). Burden (p < 0.000), disruptiveness (p = 0.001), and financial concern (p < 0.000) were significantly different between the low, moderate, and high FCG’s QOL. The best predictor of FCG’s QOL of female cancer patients in a community setting was disruptiveness (R2 = 0.622; p < 0.000) compared to burden (R2 = 0.531; p < 0.000) and financial concern (R2 = 0.184; p = 0.001), especially when other family members have not shown interest in caregiving (R2 = 0.539; p < 0.000). Conclusions: FCG’s QOL of female cancer patients in a community setting is at a moderate level. Disruptiveness, burden, and financial concern could predict FCG’s QOL significantly. The other family members’ disinterest in caregiving which belongs to the disruptiveness domain is the best predictor of FCG’s QOL of female cancer patients in a community setting, which accounted for 53.9% variance of QOL in this population
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