{"title":"智障人士对兄弟关系和家庭外关系的主观和情感体验","authors":"Anne-Laure Poujol , Régine Scelles","doi":"10.1016/j.alter.2021.03.001","DOIUrl":null,"url":null,"abstract":"<div><p>The inclusive society we live in promotes familial and extra-familial relationships for disabled people. The purpose of this research was to understand how adults with intellectual disability (ID) live with their families as well as with extra-familial peers and to identify their subjective and emotional experiences. Using an interdisciplinary approach including clinical psychology along with sociology – for the networks study – and philosophy – capabilities perspective, 23 adults ID were encountered for this qualitative research. Each of them were met three times to discuss about relationships with their peers: 1/ during a semi-directive interview; 2/ with the Family Apperception Test (Sotile et al., 1988); 3/ with a sociogram. For this research, each tool was adapted in order to support the adults ID's participation. Two structures were identified and seem to be impacted by the sibling bonds; the schooling career; the subjectivation of the disability. Analysis highlighted the importance of paying attention to the relationships with peers, since childhood to adulthood, by involving families and institutions.</p></div>","PeriodicalId":45156,"journal":{"name":"Alter-European Journal of Disability Research","volume":null,"pages":null},"PeriodicalIF":0.9000,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/j.alter.2021.03.001","citationCount":"1","resultStr":"{\"title\":\"Le vécu subjectif et émotionnel des personnes qui ont une déficience intellectuelle, à propos de leurs liens fraternels et de leurs relations extra-familiales\",\"authors\":\"Anne-Laure Poujol , Régine Scelles\",\"doi\":\"10.1016/j.alter.2021.03.001\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><p>The inclusive society we live in promotes familial and extra-familial relationships for disabled people. The purpose of this research was to understand how adults with intellectual disability (ID) live with their families as well as with extra-familial peers and to identify their subjective and emotional experiences. Using an interdisciplinary approach including clinical psychology along with sociology – for the networks study – and philosophy – capabilities perspective, 23 adults ID were encountered for this qualitative research. Each of them were met three times to discuss about relationships with their peers: 1/ during a semi-directive interview; 2/ with the Family Apperception Test (Sotile et al., 1988); 3/ with a sociogram. For this research, each tool was adapted in order to support the adults ID's participation. Two structures were identified and seem to be impacted by the sibling bonds; the schooling career; the subjectivation of the disability. Analysis highlighted the importance of paying attention to the relationships with peers, since childhood to adulthood, by involving families and institutions.</p></div>\",\"PeriodicalId\":45156,\"journal\":{\"name\":\"Alter-European Journal of Disability Research\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":0.9000,\"publicationDate\":\"2021-07-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://sci-hub-pdf.com/10.1016/j.alter.2021.03.001\",\"citationCount\":\"1\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Alter-European Journal of Disability Research\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S1875067221000225\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q4\",\"JCRName\":\"REHABILITATION\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Alter-European Journal of Disability Research","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S1875067221000225","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q4","JCRName":"REHABILITATION","Score":null,"Total":0}
引用次数: 1
摘要
我们生活的包容性社会促进了残疾人的家庭和家庭外关系。本研究的目的是了解智障成年人如何与家人以及家庭外的同龄人一起生活,并确定他们的主观和情感经历。采用跨学科的方法,包括临床心理学和社会学(网络研究)和哲学(能力研究),23名成年人参与了这项定性研究。他们每个人都要见三次面,讨论与同龄人的关系:1/在半指令性访谈中;2/家庭统觉测验(Sotile et al., 1988);3/有社会关系。在这项研究中,为了支持成年人的参与,每个工具都进行了调整。我们发现了两种结构,它们似乎受到了兄弟化学键的影响;求学生涯;残疾的主体化。分析强调了重视与同龄人的关系的重要性,从童年到成年,涉及家庭和机构。
Le vécu subjectif et émotionnel des personnes qui ont une déficience intellectuelle, à propos de leurs liens fraternels et de leurs relations extra-familiales
The inclusive society we live in promotes familial and extra-familial relationships for disabled people. The purpose of this research was to understand how adults with intellectual disability (ID) live with their families as well as with extra-familial peers and to identify their subjective and emotional experiences. Using an interdisciplinary approach including clinical psychology along with sociology – for the networks study – and philosophy – capabilities perspective, 23 adults ID were encountered for this qualitative research. Each of them were met three times to discuss about relationships with their peers: 1/ during a semi-directive interview; 2/ with the Family Apperception Test (Sotile et al., 1988); 3/ with a sociogram. For this research, each tool was adapted in order to support the adults ID's participation. Two structures were identified and seem to be impacted by the sibling bonds; the schooling career; the subjectivation of the disability. Analysis highlighted the importance of paying attention to the relationships with peers, since childhood to adulthood, by involving families and institutions.
期刊介绍:
ALTER is a peer-reviewed European journal which looks at disability and its variations. It is aimed at everyone who is involved or interested in this field. ALTER is an emblematic Latin word for all forms of difference, leaving open the question of their nature and expression. An inter-disciplinary journal First and foremost, interdisciplinarity means remaining open to all human and social sciences: sociology, anthropology, psychology, psychoanalysis, history, demography, epidemiology, economics, law, etc. It also means a connection between the different forms of knowledge - academic and fundamental - applied and relating to the experience of disability.