伦理问题是癫痫手术的限制因素

IF 0.2 Q4 PEDIATRICS

Journal of Pediatric Epilepsy Pub Date : 2020-08-20 DOI:10.1055/s-0040-1714355

S. Gedela, C. Korff

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引用次数: 0

摘要

癫痫是最常见的神经系统疾病之一，近三分之一的癫痫患者难以治疗。对其中一些患者来说，癫痫手术可能是最好的选择。在对癫痫患者的护理方面存在着很大的差异。对医学上难治性癫痫患者进行癫痫手术治疗存在诸多局限性，导致从难治性癫痫的诊断到癫痫手术治疗之间存在近19年的差距。这些限制包括从患者或家长的恐惧到缺乏可用资源。有时我们会面临伦理问题，不能为病人做正确的事。我们想与一位患有拉斯穆森脑炎的症状性难治性局灶性癫痫的患者分享我们的经验，他因为伦理问题而无法接受癫痫手术治疗。

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Ethical Issue as the Limiting Factor for Epilepsy Surgery

Abstract Epilepsy is one of the most common neurological disorders with almost one-third of these patients becoming intractable to medical treatments. For some of these patients, epilepsy surgery could be the best option. There are lot of disparities in caring of the epilepsy patients. There are multiple limitations in offering epilepsy surgery for the medically intractable epilepsy patients, resulting in almost 19 years gap from the diagnosis of intractable epilepsy to epilepsy surgery. These limitations range from patient or parental fear to lack of available resources. Sometimes we face an ethical issue being the limitation from doing the right thing for the patient. We want to share our experience with one of our patients with symptomatic medically intractable focal epilepsy from Rasmussen’s encephalitis who could not get the epilepsy surgery treatment because of an ethical issue.

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来源期刊

Journal of Pediatric Epilepsy PEDIATRICS-

自引率

0.00%

发文量

期刊介绍： The Journal of Pediatric Epilepsy is an English multidisciplinary peer-reviewed international journal publishing articles on all topics related to epilepsy and seizure disorders, epilepsy surgery, neurology, neurosurgery, and neuropsychology in childhood. These topics include the basic sciences related to the condition itself, the differential diagnosis, natural history, and epidemiology of seizures, and the investigation and practical management of epilepsy (including drug treatment, neurosurgery and non-medical and behavioral treatments). Use of model organisms and in vitro techniques relevant to epilepsy are also acceptable. Journal of Pediatric Epilepsy provides an in-depth update on new subjects and current comprehensive coverage of the latest techniques used in the diagnosis and treatment of childhood epilepsy.