德国年轻癌症患者的信息需求

IF 0.7 4区管理学 Q3 INFORMATION SCIENCE & LIBRARY SCIENCE

Information Research-An International Electronic Journal Pub Date : 2022-01-01 DOI:10.47989/irisic2212

Paulina Bressel

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引用次数: 1

摘要

在德国，每年大约有50万人被新诊断为癌症，其中只有3.3%是年龄在18至39岁之间的年轻人。尽管他们在护理和治疗方面具有年龄特征，但在卫生基础设施中很少受到关注。因此，本研究的目的是调查德国年轻成年癌症患者的信息需求。在半结构化的在线指导访谈中，14名年轻人在治疗结束或护理结束时进行了访谈。定性分析采用归纳法，采用主题分析法。此外，使用癌症患者旅程的概念分析了确定的主题。确定了十个主题，分为信息、服务和护理需要。虽然确定的三个医学主题的需求在很大程度上得到了充分的满足，但这并不适用于其余七个主题的需求。研究结果清楚地表明，在回答年轻癌症患者的信息、服务和护理需求方面，德国的卫生基础设施仍有很大的改进潜力。

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Information needs of young adults with cancer in Germany

In Germany, approximately 500.000 people are newly diagnosed with cancer every year, of which only 3,3% are young adults between 18 and 39 years of age. Despite age-specific characteristics in terms of care and treatment, they receive little attention in the health infrastructure. The aim of this study is therefore to investigate information needs of young adults with cancer in Germany. Semi-structured guided online interviews were conducted with 14 young adults at the end of their treatment or in aftercare. The qualitative analysis was carried out inductively, using thematic analysis. In addition, the identified topics were analysed using the concept of the cancer patient journey. Ten themes were identified which are divided into information, service and care needs. While needs of the three identified medical themes are, for the most part, adequately answered, this does not apply to needs of the remaining seven themes. The findings clearly demonstrate that the German health infrastructure still holds a lot of potential for improvement regarding answering information, service and care needs for young adults with cancer.

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来源期刊

Information Research-An International Electronic Journal INFORMATION SCIENCE & LIBRARY SCIENCE-

CiteScore

1.20

自引率

12.50%

发文量

审稿时长

45 weeks

期刊介绍： Information Research, is an open access, international, peer-reviewed, scholarly journal, dedicated to making accessible the results of research across a wide range of information-related disciplines. It is published by the University of Borås, Sweden, with the financial support of an NOP-HS Scientific Journal Grant. It is edited by Professor T.D. Wilson, and is hosted, and given technical support, by Lund University Libraries, Sweden.