脑瘫患儿的生活质量

Nalina Nanjundappa, Pushpa Krishna, Sujaya B, Ritu Ghosh, T. K
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引用次数: 0

摘要

背景:脑瘫(CP)是儿童最常见的运动障碍。生活质量(QOL)已成为儿童时期的一个重要概念,特别是对残疾儿童而言。CP会影响儿童的日常生活活动能力,从而影响患者及其家庭的生活质量。目的与目的:本研究的目的是评估CP患儿的生活质量。材料与方法:本研究采用cpqol -儿童主要照顾者问卷(4-12岁)对29例4-12岁CP患儿的生活质量进行评估。问卷由父母之一或他们的照顾者完成。将生活质量各领域的得分转换为0 ~ 100分的量表进行分析。结果:父母报告的各领域得分均较低,功能领域影响最大,疼痛领域影响最小。女孩的生活质量比男孩好。生活质量评分与大运动功能分级系统评定的CP严重程度呈负相关,提示残疾严重程度对生活质量有负相关影响。结论:CP患儿生活质量较差,受年龄、性别和运动功能的影响
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Quality of life in children with cerebral palsy
Background: Cerebral palsy (CP) is the most common motor disability in childhood. Quality of life (QOL) has emerged as an important concept in childhood, especially for children with disabilities. CP has an impact on a child’s capacity to do activities of daily living thus affecting QOL of patients and their families. Aims and Objectives: The objective of present study was to assess the QOL in children with CP. Materials and Methods: In this study, 29 children with CP in the age group of 4–12 years were evaluated for QOL was assessed using CPQOL-Child Primary Caregiver Questionnaire (4–12 years). The questionnaire was completed by one of the parents or their caregiver. Scores for each domain of QOL were converted to a scale ranging from 0 to 100 and analyzed. Results: The scores as reported by the parents were low for each of the domains with maximum effect seen in functioning domain and least in pain domain. Girls had better QOL than boys. The QOL scores were negatively related to the severity of CP which was assessed by gross motor function classification system suggesting that severity of disability had negative impact on QOL. Conclusion: QOL of children with CP was found to be poor and was influenced by age, sex and motor functioning
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