营养基因组学,大众传媒和商业化压力

T. Bubela, Ben Taylor
{"title":"营养基因组学,大众传媒和商业化压力","authors":"T. Bubela, Ben Taylor","doi":"10.7939/R34X54P6T","DOIUrl":null,"url":null,"abstract":"In 2004, the International Human Genome Sequencing Consortium published its scientifi c description of the fi nished human genome sequence containing 20,000 to 25,000 protein-coding genes. 1 The Human Genome Project (HGP), through political rhetoric and publicity, was portrayed as an end in itself, which, in the near term, would produce an explosion of new genomics products, services and therapeutics. Most have yet to materialize and some of those that have, especially in the area of genetic testing targeted directly at consumers, raise considerable ethical, regulatory and legitimacy issues. In particular, the fi eld of nutrigenomics illustrates many of these concerns in the context of direct-to-consumer (DTC) advertising and delivery of genetic testing services, related products (such as nutritional supplements) and associated media coverage. This article presents preliminary data from a study of how the media translate knowledge about nutrigenomics to the public. Specifi cally, we are interested in whether media coverage of nutrigenomics is of suffi cient quality for the public to understand the risks and benefi ts associated with genetic testing. We have considered three main sources of information: peerreviewed science journals, media coverage and, more briefl y, promotional material from nutrigenomic company websites. A fuller understanding of the media’s role has policy implications as countries deal with regulating the provision of genetic testing services and the sale of nutritional supplements and personalized diet plans. It also has implications for regulating commercial representations of nutrigenomics, especially DTC advertising by genetic testing companies and the claims they can make about health benefi ts.","PeriodicalId":87182,"journal":{"name":"Health law review","volume":"1 1","pages":"41"},"PeriodicalIF":0.0000,"publicationDate":"2014-11-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"2","resultStr":"{\"title\":\"Nutrigenomics, Mass Media and Commercialization Pressures\",\"authors\":\"T. Bubela, Ben Taylor\",\"doi\":\"10.7939/R34X54P6T\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"In 2004, the International Human Genome Sequencing Consortium published its scientifi c description of the fi nished human genome sequence containing 20,000 to 25,000 protein-coding genes. 1 The Human Genome Project (HGP), through political rhetoric and publicity, was portrayed as an end in itself, which, in the near term, would produce an explosion of new genomics products, services and therapeutics. Most have yet to materialize and some of those that have, especially in the area of genetic testing targeted directly at consumers, raise considerable ethical, regulatory and legitimacy issues. In particular, the fi eld of nutrigenomics illustrates many of these concerns in the context of direct-to-consumer (DTC) advertising and delivery of genetic testing services, related products (such as nutritional supplements) and associated media coverage. This article presents preliminary data from a study of how the media translate knowledge about nutrigenomics to the public. Specifi cally, we are interested in whether media coverage of nutrigenomics is of suffi cient quality for the public to understand the risks and benefi ts associated with genetic testing. We have considered three main sources of information: peerreviewed science journals, media coverage and, more briefl y, promotional material from nutrigenomic company websites. A fuller understanding of the media’s role has policy implications as countries deal with regulating the provision of genetic testing services and the sale of nutritional supplements and personalized diet plans. It also has implications for regulating commercial representations of nutrigenomics, especially DTC advertising by genetic testing companies and the claims they can make about health benefi ts.\",\"PeriodicalId\":87182,\"journal\":{\"name\":\"Health law review\",\"volume\":\"1 1\",\"pages\":\"41\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2014-11-12\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"2\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Health law review\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.7939/R34X54P6T\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Health law review","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.7939/R34X54P6T","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 2

摘要

2004年,国际人类基因组测序联盟公布了包含20,000至25,000个蛋白质编码基因的完整人类基因组序列的科学描述。人类基因组计划(HGP),通过政治辞令和宣传,被描绘成一个目的本身,在短期内,将产生新的基因组产品,服务和治疗方法的爆炸。大多数尚未实现,其中一些已经实现,特别是在直接针对消费者的基因检测领域,引发了相当大的伦理、监管和合法性问题。特别是,营养基因组学领域在直接面向消费者(DTC)的广告和提供基因检测服务、相关产品(如营养补充剂)和相关媒体报道的背景下说明了许多这些问题。本文介绍了一项关于媒体如何将营养基因组学知识传递给公众的初步研究数据。具体来说,我们感兴趣的是,媒体对营养基因组学的报道是否足以让公众了解与基因检测相关的风险和益处。我们考虑了三个主要的信息来源:同行评议的科学期刊、媒体报道,以及更简单地说,营养基因组公司网站上的宣传材料。在各国管理基因检测服务的提供、营养补充剂和个性化饮食计划的销售时,更全面地了解媒体的作用会对政策产生影响。它还对规范营养基因组学的商业表述产生了影响,尤其是基因检测公司的DTC广告,以及它们对健康益处的宣称。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Nutrigenomics, Mass Media and Commercialization Pressures
In 2004, the International Human Genome Sequencing Consortium published its scientifi c description of the fi nished human genome sequence containing 20,000 to 25,000 protein-coding genes. 1 The Human Genome Project (HGP), through political rhetoric and publicity, was portrayed as an end in itself, which, in the near term, would produce an explosion of new genomics products, services and therapeutics. Most have yet to materialize and some of those that have, especially in the area of genetic testing targeted directly at consumers, raise considerable ethical, regulatory and legitimacy issues. In particular, the fi eld of nutrigenomics illustrates many of these concerns in the context of direct-to-consumer (DTC) advertising and delivery of genetic testing services, related products (such as nutritional supplements) and associated media coverage. This article presents preliminary data from a study of how the media translate knowledge about nutrigenomics to the public. Specifi cally, we are interested in whether media coverage of nutrigenomics is of suffi cient quality for the public to understand the risks and benefi ts associated with genetic testing. We have considered three main sources of information: peerreviewed science journals, media coverage and, more briefl y, promotional material from nutrigenomic company websites. A fuller understanding of the media’s role has policy implications as countries deal with regulating the provision of genetic testing services and the sale of nutritional supplements and personalized diet plans. It also has implications for regulating commercial representations of nutrigenomics, especially DTC advertising by genetic testing companies and the claims they can make about health benefi ts.
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术官方微信