关于性和癌症的在线资源。

G. Yamey
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引用次数: 4

摘要

斯特德及其同事的研究表明,患有卵巢癌的女性希望她们的医生与她们讨论性问题,但这样的讨论很少。参与研究的内科医生对讨论性感到不自在,而且对癌症可能导致的性问题缺乏了解。如果互联网可以作为参考的话,癌症患者团体在提供关于癌症和性的坦率信息方面比健康专家做得更好。例如,你能回答你的病人关于在癌症治疗期间何时避免性行为或哪种性姿势更舒服的问题吗?癌症支持和信息服务机构cancerbackup (www.cancerbacup.org.uk)对这两个问题都给出了明确的答案(www.cancerbacup.org.uk/info/sex/sex-9.htm)。它还提供了“由癌症引起的性问题的解决方案及其治疗”(www.cancerbacup.org.uk/info/sex/sex-5.htm),包括性交时的疼痛、性欲丧失、身体形象的改变和勃起功能障碍。另一个关于性和癌症的有价值的资源库是来自费城宾夕法尼亚大学癌症中心的肿瘤链接:cancer.med.upenn。edu/psychosocial/sexuality。该网站有针对提供者和患者的信息,其中包括生育和生殖问题。它还链接到美国国立卫生研究院国家癌症研究所的一份名为“抽出时间”的癌症生活指南(cancernet.nci.nih.gov/taking_time/timeintro.html)。指南的一个部分探讨了癌症如何影响患者的自我形象,以及这如何影响他们的人际关系。许多网站都在讨论癌症和性取向之间的关系。其中之一就是莫特纳项目(www.mautnerproject.org),这是一个致力于帮助患有癌症的女同性恋者、她们的伴侣和照顾者的美国组织。该项目旨在为女同性恋者提供更好的癌症检测服务,其网站给出了女同性恋者患乳腺癌、宫颈癌和卵巢癌的几率高于异性恋女性的原因。男女同性恋医学协会总结了迄今为止的研究,表明女同性恋、男同性恋、双性恋和变性人可能不成比例地受到某些癌症的影响(www.glma.org/policy/hp2010/PDF/Cancer.pdf),所有的卫生专业人员都应该接受“关于性少数身份的文化能力培训”。无论患者的具体癌症类型或性别身份如何,当涉及到解决性困难和性担忧时,一个建议词反复出现在互联网网站上:“沟通”。病人被鼓励向他们的伴侣表达他们的需求,医生被敦促在性问题的信息交流方面做得更好。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Online resources on sexuality and cancer.
Stead and colleagues' study suggests that women with ovarian cancer want their physicians to discuss sexual issues with them but that such discussions are rare. Physicians in the study were uncomfortable discussing sex and lacked knowledge about the sexual problems that cancer can cause. If the Internet is anything to go by, cancer patient groups do better than health professionals in providing frank information about cancer and sexuality. For example, could you answer your patients' questions about when to avoid sex during cancer treatment or which sexual positions might be more comfortable? CancerBACUP, a cancer support and information service (www.cancerbacup.org.uk), gives explicit answers to both of these questions (www.cancerbacup.org.uk/info/sex/sex-9.htm). It also gives “solutions to sexual problems caused by cancer and its treatment” (www.cancerbacup.org.uk/info/sex/sex-5.htm), including pain during intercourse, loss of libido, changes in body image, and erectile dysfunction. Another valuable collection of resources on sexuality and cancer is Oncolink, from the University of Pennsylvania Cancer Center, Philadelphia: cancer.med.upenn. edu/psychosocial/sexuality. The site has information aimed at both providers and patients, and it includes fertility and reproductive issues. It also links to a guide to living with cancer, called “Taking Time,” from the National Cancer Institute, National Institutes of Health (cancernet.nci.nih.gov/taking_time/timeintro.html). One section of the guide explores how patients' self-image can be affected by cancer and how this can affect their relationships. Many web sites discuss the relationship between cancer and sexual identity. One of these is the Mautner Project (www.mautnerproject.org), a US organization dedicated to lesbians with cancer, their partners, and caregivers. The project campaigns for better cancer detection services for lesbians, and its web site gives the reasons why lesbians have higher rates of breast, cervical, and ovarian cancer than heterosexual women. The Gay and Lesbian Medical Association summarizes the research to date that suggests that lesbian, gay, bisexual, and transgender people may be disproportionately affected by certain cancers (www.glma.org/policy/hp2010/PDF/Cancer.pdf) and that all health professionals should receive “cultural competence training about sexual minority status.” Regardless of a patient's specific cancer type or sexual identity, when it comes to resolving sexual difficulties and concerns, a word of advice appears repeatedly on Internet sites: “communication.” Patients are encouraged to communicate their needs to their partners, and physicians are urged to do better at communicating information about sexual issues.
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