SY29-01:癌症海啸:它是什么?它对幸存者、临床医生和研究人员意味着什么

D. Mayer, C. Alfano, Frank Panedo
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引用次数: 0

摘要

我们正面临癌症幸存者的海啸;他们中的大多数将是年龄较大和较长期的幸存者,其中大多数人还会有合并症。对幸存者的护理包括对复发和新发癌症的监测、治疗后遗症的管理和健康促进,所有这些都需要护理协调。本次会议将描述幸存者数量和类型的变化,讨论癌症及其治疗对这一不断增长的人群的后期和长期影响,并重点关注对弱势群体的影响。将审查解决幸存者面临的问题所需的研究和干预措施。将讨论解决幸存者护理的实践、研究和政策问题。癌症幸存者人数不断增加,同时提供者短缺,初级治疗和后续护理费用不断上升,幸存者之间存在显著的健康差距,对非正式护理人员的依赖增加,以及向基于价值的护理过渡,这些因素正在塑造癌症护理的提供。这些因素使我们迫切需要为癌症幸存者提供协调、全面、个性化的护理,以满足幸存者和护理人员的独特需求,同时最大限度地减少提供者短缺的影响,并控制医疗保健系统、幸存者和家庭的成本。这些变化包括改革护理服务、教育和政策,以公平地改善幸存者的结果并支持照顾者。在Alfano博士的演讲中,她将重点讨论加速这些变化的三个关键研究重点,包括:(1)对幸存者的需求、功能和照顾者的需求进行常规评估;(2)从诊断开始,为幸存者和照顾者提供个性化、量身定制的信息和转诊,尽可能将服务从护理点转移到需要点;(3)传播和支持实施新的护理方法和干预措施。将讨论解决这些优先事项的机遇和挑战。在过去的几十年里,肿瘤患者早期检测和治疗效果的进步导致了癌症幸存者数量的增长和前所未有的数量。基于多种因素,包括病前心理社会功能、疾病严重程度、经济和社会资源以及与治疗相关的损害,癌症幸存者的经历可能是高度可变的。生存的好处可能被与治疗相关的慢性和使人衰弱的副作用、持续的疾病监测、经济负担和人际关系中断所抵消。由于社会和背景障碍、获得护理的机会有限、文化驱动的疾病信念以及相互竞争的需求(如家庭义务、经济负担),这些挑战在弱势群体(如种族/族裔少数群体、农村社区)中往往会加剧,这些共同可能进一步损害与健康有关的生活质量和整体社会心理调整。技术进步开创了技术驱动的监测和护理的新时代,可以提供可行、精确、生态有效和反应灵敏的方法来满足癌症幸存者的需求。在本次演讲中,Penedo博士将讨论几项研究,这些研究利用电子健康和移动健康技术来监测和减轻症状负担,提高生活质量和其他患者报告的结果,这些研究涉及不同种族/种族的前列腺癌幸存者和拉丁裔乳腺癌幸存者。我们将讨论机遇和挑战。引用格式:Deborah K. Mayer, Catherine Alfano, Frank Panedo。癌症海啸:它是什么,它对幸存者、临床医生和研究人员意味着什么[摘要]。摘自:2019年美国癌症研究协会年会论文集;2019年3月29日至4月3日;亚特兰大,乔治亚州。费城(PA): AACR;癌症杂志,2019;79(13增刊):SY29-01。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Abstract SY29-01: The Cancer Tsunami: What is it and what does it mean for survivors, clinicians, and researchers
We are facing a tsunami of cancer survivors; the majority of whom will be older and longer-term survivors most of whom will also have comorbid illnesses. Care of survivors include surveillance for recurrences and new cancers, management of the sequelae of treatment, and health promotion all requiring care coordination. This session will describe the changes in the number and type of survivors, discuss late and long-term effects of cancer and its treatment on this growing population and focus on the impact in vulnerable populations. Needed research and interventions to address the issues survivors face will be examined. Practice, research and policy issues to address survivors care will be discussed. A Research Roadmap for Equitably Improving Outcomes for Cancer Survivors Cancer care delivery is being shaped by growing numbers of cancer survivors coupled with provider shortages, rising costs of primary treatment and follow-up care, significant survivorship health disparities, increased reliance on informal caregivers, and the transition to value-based care. These factors create a compelling need to provide coordinated, comprehensive, personalized care for cancer survivors in ways that meet survivors’ and caregivers’ unique needs while minimizing the impact of provider shortages and controlling costs for healthcare systems, survivors, and families. These changes involve reforming care delivery, education, and policy to equitably improve survivor outcomes and support caregivers. In Dr. Alfano’s talk, she will focus on three critical research priorities to accelerate these changes including: (1) implementing routine assessment of survivors’ needs and functioning and caregivers’ needs; (2) facilitating personalized, tailored, information and referrals from diagnosis onward for both survivors and caregivers, shifting services from point-of-care to point-of-need wherever possible; and (3) disseminating and supporting the implementation of new care methods and interventions. Opportunities and challenges to address these priorities will be discussed. Survivorship Interventions in Vulnerable Populations: Improving Patient Reported Outcomes Via Technology Based Delivery and Addressing the Sociocultural Context Over the past several decades, advances in early detection and treatment efficacy in oncology patients has led to a growing and unprecedented number of cancer survivors. The cancer survivorship experience can be highly variable based on multiple factors including pre-morbid psychosocial functioning, disease severity, financial and social resources, and treatment-related impairment. Benefits of survivorship can be offset by chronic and debilitating treatment-related side effects, ongoing disease monitoring, financial burden and interpersonal disruption. These challenges are often exacerbated in vulnerable populations (e.g., racial/ethnic minorities, rural communities) due to social and contextual barriers, limited access to care, culturally-driven illness beliefs, and competing demands (e.g., family obligations, financial burden) which collectively can further compromise health-related quality of life and overall psychosocial adjustment. Technological advances have ushered in a new era of technology-driven monitoring and care that can provide feasible, precise, ecologically valid and responsive methods to address the needs of cancer survivors. In this presentation, Dr. Penedo will discuss several studies that are capitalizing on e-Health and m-Health technologies to monitor and reduce symptom burden and improve quality of life and other patient reported outcomes in ethnically/racially diverse prostate cancer survivors and Latina breast cancer survivors. Opportunities and challenges will be discussed. Citation Format: Deborah K. Mayer, Catherine Alfano, Frank Panedo. The Cancer Tsunami: What is it and what does it mean for survivors, clinicians, and researchers [abstract]. In: Proceedings of the American Association for Cancer Research Annual Meeting 2019; 2019 Mar 29-Apr 3; Atlanta, GA. Philadelphia (PA): AACR; Cancer Res 2019;79(13 Suppl):Abstract nr SY29-01.
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