测量儿童血友病患者的依从性:VERITAS-Pro和VERITAS-PRN的法语适应和心理测量特性

S. Bérubé, É. Rondeau, S. Sultan
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引用次数: 4

摘要

Veritas-Pro和Veritas-PRN是评估血友病患者治疗依从性的工具。低依从性可限制治疗效果,并导致出血发作和慢性疼痛增加。本研究的目的是将这两份问卷翻译成法语,报告一组儿科患者及其父母的初步心理测量数据,并比较年轻患者及其父母之间的评分。翻译过程遵循以下步骤:(1)前向翻译(2)后向翻译(3)最终版本,(4)测试。翻译人员熟悉儿科社区。13名儿科患者和20名家长参与了这项研究。翻译过程没有太大的困难,孩子们很容易理解法语版本。初步的心理测量分析表明,总量表和大部分分量表具有良好到极好的一致性。然而,剂量(VERITAS-Pro)和计划(VERITAS-PRN)分量表的一致性较低。当儿科患者是主要输液器时,他们报告的预防跳过比父母对其行为的估计更多。对于发作性治疗,当父母是主要的输液器时,他们报告的时间子量表的依从性比儿童对他们行为的估计更好。当父母自己负责输液时,他们对预防的依从性也比年轻患者自主时高。初步的心理测量分析支持使用法语版本的总量表和大多数子量表。然而,结果不支持在改编版本中使用剂量(VERITAS-Pro)和计划(VERITAS-PRN)分量表。进一步的研究应该在更大的样本上进行。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Measuring adherence in pediatric hemophilia patients: French-language adaptation of the VERITAS-Pro and VERITAS-PRN and psychometric properties
Abstract Veritas-Pro and Veritas-PRN are instruments to assess adherence to treatment of people with hemophilia. Low adherence can limit treatment effectiveness and result in increased bleeding episodes and chronic pain. The purpose of this study was to adapt both questionnaires into French, report preliminary psychometric data in a group of pediatric patients and their parents, and compare ratings between young patients and their parents. The translation process followed these steps: (1) forward translation (2) backward translation (3) final version, and (4) testing. Translators were familiar with the pediatric community. Thirteen pediatric patients and twenty parents participated in the study. The translation process was conducted without major difficulties, and children easily understood the French versions. Preliminary psychometric analyses showed good to excellent consistency for the total scale and most subscales. However, the consistency of the Dose (VERITAS-Pro) and the Plan (VERITAS-PRN) subscales were low. When pediatric patients were primary infusers, they reported more skipping of prophylaxis than in parents’ estimation of their behavior. For episodic treatment, when parents were primary infusers, they reported better adherence for the Time subscale vs. children’s estimation of their behavior. Parents also rated higher adherence on prophylaxis when they were themselves in charge of performing the infusions than when young patients were autonomous. Preliminary psychometric analyses support the use of the French versions for the total scale and most subscales. However, the results did not support the use of the subscales Dose (VERITAS-Pro) and Plan (VERITAS-PRN) in the adapted versions. Further studies should be performed on larger samples.
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