同伴之间的联系:对专为年轻癌症患者设计的社交支持应用程序的看法。

Geriatric nephrology and urology Pub Date : 2020-01-01 Epub Date: 2019-09-16 DOI:10.1002/pon.5220
Allison J Lazard, Adam J Saffer, Lindsey Horrell, Catherine Benedict, Brad Love
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引用次数: 0

摘要

目的:社会支持是患有癌症的年轻成年人(YAs)的一个关键需求,但经常得不到满足。青年癌症患者渴望获得与年龄相适应的资源,以便与同龄人建立联系。点对点移动应用程序是一种很有前景的提供社会支持的干预措施。如果在开发过程中考虑到用户的意见,了解应用程序的设计(外观和功能)是否能提供有意义的联系,那么点对点应用程序就会更加有效:在 2017 年 4 月的一次青年癌症大会上,我们采访了 22 名青年,以评估他们对点对点应用程序的看法:参与者的平均年龄为 29 岁,大多为女性(77%)、白人(73%)和受过良好教育者(68% 拥有 4 年制大学或更高学历)。大多数参与者表示有兴趣使用应用程序与青年演员建立联系,但他们的偏好因癌症诊断的普遍性或罕见性而异。青年演员们在个人资料匿名性与包含更多个人信息的个人资料之间进行了权衡,要求提供过滤选项以满足不同的支持需求,并希望获得量身定制的信息和聊天室功能(例如,特定主题和搜索功能):研究结果表明,应用程序有望满足雅安癌症幸存者尚未得到满足的同伴互助需求,并为应用程序的优化提供了指导:临床意义:同伴互助应用程序的设计应使用户能够控制自己的身份,并自定义功能以建立有意义的联系。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Peer-to-peer connections: Perceptions of a social support app designed for young adults with cancer.

Objective: Social support is a critical, yet frequently unmet, need among young adults (YAs) with cancer. YAs desire age-appropriate resources to connect with peers. Peer-to-peer mobile apps are promising interventions to provide social support. Peer-to-peer apps will be more effective if development incorporates users' input for whether app designs (look and function) afford meaningful connections.

Methods: We interviewed 22 YAs to assess perceptions of a peer-to-peer app at a YA cancer convention in April 2017.

Results: Participants were an average age of 29, mostly female (77%), white (73%), and well educated (68% with 4-year college degree or higher). Most participants expressed interested in using an app to connect with YAs, but preferences varied by prevalence or rarity of one's cancer diagnosis. YAs shared trade-offs for profile anonymity versus profiles with more personal information, requests for filter options to connect for varying support needs, and desires for tailored messaging and chat room features (eg, topic-specific and search capabilities).

Conclusion: Findings demonstrate the promise of apps to fulfill YA cancer survivors' unmet peer support needs and provide guidance for app optimization.

Clinical implications: Peer-to-peer support apps should be designed so users can control their identity and customize features for meaningful connections.

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