超越患者门户:住院患者的支持需求

S. Haldar, Sonali R. Mishra, M. Khelifi, A. Pollack, W. Pratt
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引用次数: 17

摘要

尽管患者门户(使患者能够访问其健康信息的技术)被认为是提高患者参与度的关键,但我们对如何设计这些技术以满足住院患者和护理人员的需求了解有限。通过对30名患者和护理人员的半结构化访谈,我们研究了未来的患者门户网站如何最好地满足他们的需求,并支持他们参与护理。我们的研究结果揭示了现有患者门户网站不支持的六种需求:(1)从家庭到医院的过渡,(2)调整时间表和接收状态更新,(3)理解和记住护理,(4)提出问题和标记问题,(5)与提供者和护理人员合作,以及(6)为出院和家庭护理做准备。基于这些发现,我们讨论了三个设计含义:突出以患者为中心的目标和偏好,提供有关护理事件的动态信息,以及为情境受损用户设计。我们的贡献指导未来的患者门户参与住院患者和护理人员作为主要利益相关者在他们的卫生保健。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Beyond the Patient Portal: Supporting Needs of Hospitalized Patients
Although patient portals-technologies that give patients access to their health information-are recognized as key to increasing patient engagement, we have a limited understanding of how these technologies should be designed to meet the needs of hospitalized patients and caregivers. Through semi-structured interviews with 30 patients and caregivers, we examine how future patient portals can best align with their needs and support engagement in their care. Our findings reveal six needs that existing patient portals do not support: (1) transitioning from home to hospital, (2) adjusting schedules and receiving status updates, (3) understanding and remembering care, (4) asking questions and flagging problems, (5) collaborating with providers and care- givers, and (6) preparing for discharge and at-home care. Based on these findings, we discuss three design implications: highlight patient-centric goals and preferences, provide dynamic information about care events, and design for situationally-impaired users. Our contributions guide future patient portals in engaging hospitalized patients and care- givers as primary stakeholders in their health care.
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