The parental involvement process regarding childhood cancer survivors becoming independent: Focus on balancing health management and social lives from adolescence to adulthood

Aim

This study aimed to elucidate the parental involvement process regarding childhood cancer survivors' (CCSs') independence while balancing their health management and social lives from adolescence to adulthood to obtain suggestions for long-term support for CCSs and their parents.

Methods

Semi-structured interviews were conducted with 19 parents of Japanese CCSs aged 16–25 years. The data were then qualitatively analyzed using the modified grounded theory approach.

Results

Three “categories” and 20 “concepts” were generated. The connections among these categories and concepts revealed the parental involvement process regarding CCSs' independence while balancing their health management and social lives. The first phase in this process is to “support careful behaviors,” mainly during CCSs' treatment in the outpatient clinic or shortly after discharge. As CCSs recover after cancer treatment, parents “watch over, but feel conflicted,” with “conflicts between protecting their sons/daughters and giving them independence.” Then, parents reach a phase in which they “acknowledge and entrust,” which includes “acknowledgment of development and efforts” of their sons/daughters, and develop an “attitude to entrust medical checkups to their sons/daughters, along with their preparation.” The influencing factors of the three phases include “ongoing anxieties about the late effects of therapy and recurrence” and an “expectation for their sons/daughters to acquire abilities for living independently.”

Conclusions

These findings suggest that nurses need to accept parents' feelings and thoughts regarding conflicts with CCSs, recognition of CCSs' development, and values. These processes may help nurses and health-care professionals support parents from a comprehensive perspective.