Amanda N Leggett, Sheria G Robinson-Lane, Grace Oxford, Natalie Leonard, Alicia G Carmichael, Elaina Baker, Janeann Paratore, Amanda C Blok, Hallie C Prescott, Theodore J Iwashyna, Richard Gonzalez
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Thematic qualitative analysis was done using Watkins' rigorous and accelerated data reduction technique with MAXQDA software.</p><p><strong>Results: </strong>Seven themes emerged regarding factors that facilitated or posed barriers to care: other health conditions that increased complexity of care, interactions and experiences in the health care system, COVID-19's proliferation into other areas of life, the psychological well-being of the patient-caregiver dyad, experience of support from the dyad's network, the role of caregiving in the dyad, and contextual circumstances of the dyad. The themes often included both barriers and facilitators, depending on the experience of the dyad (eg, feeling encouraged vs fatigued by their support network).</p><p><strong>Conclusions: </strong>Understanding how patients with COVID-19 and their caregivers experience illness management across the recovery journey can help clarify the COVID-19 care-giving process and identify intervention targets to improve overall health and well-being of the care dyad.</p>","PeriodicalId":7607,"journal":{"name":"American Journal of Critical Care","volume":"32 6","pages":"431-439"},"PeriodicalIF":2.7000,"publicationDate":"2023-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Barriers to and Facilitators of Family Caregiving of Patients With COVID-19 Early in the Pandemic.\",\"authors\":\"Amanda N Leggett, Sheria G Robinson-Lane, Grace Oxford, Natalie Leonard, Alicia G Carmichael, Elaina Baker, Janeann Paratore, Amanda C Blok, Hallie C Prescott, Theodore J Iwashyna, Richard Gonzalez\",\"doi\":\"10.4037/ajcc2023364\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>In 2020, many family members were thrust into the role of caregiving for a relative with COVID-19 with little preparation, training, or understanding of the disease and its symptoms.</p><p><strong>Objectives: </strong>To explore the barriers to and facilitators of caregiving experienced by family caregivers of patients with COVID-19 who had been in intensive care in the pandemic's earliest months.</p><p><strong>Methods: </strong>In-depth qualitative interviews were conducted by web conference with 16 adults recovering at home after intubation for COVID-19 in an intensive care unit at a major academic medical center and their primary caregivers from March to August 2020 (N = 32). Thematic qualitative analysis was done using Watkins' rigorous and accelerated data reduction technique with MAXQDA software.</p><p><strong>Results: </strong>Seven themes emerged regarding factors that facilitated or posed barriers to care: other health conditions that increased complexity of care, interactions and experiences in the health care system, COVID-19's proliferation into other areas of life, the psychological well-being of the patient-caregiver dyad, experience of support from the dyad's network, the role of caregiving in the dyad, and contextual circumstances of the dyad. The themes often included both barriers and facilitators, depending on the experience of the dyad (eg, feeling encouraged vs fatigued by their support network).</p><p><strong>Conclusions: </strong>Understanding how patients with COVID-19 and their caregivers experience illness management across the recovery journey can help clarify the COVID-19 care-giving process and identify intervention targets to improve overall health and well-being of the care dyad.</p>\",\"PeriodicalId\":7607,\"journal\":{\"name\":\"American Journal of Critical Care\",\"volume\":\"32 6\",\"pages\":\"431-439\"},\"PeriodicalIF\":2.7000,\"publicationDate\":\"2023-11-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"American Journal of Critical Care\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.4037/ajcc2023364\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"CRITICAL CARE MEDICINE\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"American Journal of Critical Care","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.4037/ajcc2023364","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"CRITICAL CARE MEDICINE","Score":null,"Total":0}
Barriers to and Facilitators of Family Caregiving of Patients With COVID-19 Early in the Pandemic.
Background: In 2020, many family members were thrust into the role of caregiving for a relative with COVID-19 with little preparation, training, or understanding of the disease and its symptoms.
Objectives: To explore the barriers to and facilitators of caregiving experienced by family caregivers of patients with COVID-19 who had been in intensive care in the pandemic's earliest months.
Methods: In-depth qualitative interviews were conducted by web conference with 16 adults recovering at home after intubation for COVID-19 in an intensive care unit at a major academic medical center and their primary caregivers from March to August 2020 (N = 32). Thematic qualitative analysis was done using Watkins' rigorous and accelerated data reduction technique with MAXQDA software.
Results: Seven themes emerged regarding factors that facilitated or posed barriers to care: other health conditions that increased complexity of care, interactions and experiences in the health care system, COVID-19's proliferation into other areas of life, the psychological well-being of the patient-caregiver dyad, experience of support from the dyad's network, the role of caregiving in the dyad, and contextual circumstances of the dyad. The themes often included both barriers and facilitators, depending on the experience of the dyad (eg, feeling encouraged vs fatigued by their support network).
Conclusions: Understanding how patients with COVID-19 and their caregivers experience illness management across the recovery journey can help clarify the COVID-19 care-giving process and identify intervention targets to improve overall health and well-being of the care dyad.
期刊介绍:
The editors of the American Journal of Critical Care
(AJCC) invite authors to submit original manuscripts
describing investigations, advances, or observations from
all specialties related to the care of critically and acutely ill
patients. Papers promoting collaborative practice and
research are encouraged. Manuscripts will be considered
on the understanding that they have not been published
elsewhere and have been submitted solely to AJCC.