多学科多发性硬化症护理单位的患者满意度:瑞士单中心研究

Maha Wybitul, H. Njago, Agata Luczkiewicz, H. Pihan
{"title":"多学科多发性硬化症护理单位的患者满意度:瑞士单中心研究","authors":"Maha Wybitul, H. Njago, Agata Luczkiewicz, H. Pihan","doi":"10.17925/usn.2022.18.2.142","DOIUrl":null,"url":null,"abstract":"Introduction: Multiple sclerosis (MS) is an immune-mediated neurodegenerative disease. Patients are commonly diagnosed when they are between 20 to 50 years and require life-long treatment. Appropriate treatment is complex and involves a wide range of professional disciplines and expertise. This multifariousness highlights the need for multidisciplinary MS care units that offer a comprehensive and well-managed treatment approach. Such care units would enable (1) time-efficient organization and coordination, (2) better inter-, intradisciplinary and patient communication, (3) neurologists, nurses and therapists specialized in MS and (4) formalized diagnostic workup procedures and protocols for the initiation and follow-up of disease-modifying therapies. Methods: The current single-centre pilot study evaluated such a multidisciplinary MS care unit by measuring patient satisfaction and quality of life prior to and after the reorganization of a Swiss clinical centre. Results: A significant improvement in patient satisfaction was seen after the reorganization of the Swiss clinical centre into an MS centre, and quality of life was maintained throughout. Conclusion: This study exemplifies the importance of MS-specialized care and encourages further longitudinal, large-scale multicentre studies.","PeriodicalId":90076,"journal":{"name":"US neurology","volume":"1 1","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Patient Satisfaction in a Multidisciplinary Multiple Sclerosis Care Unit: A Swiss Single-centre Study\",\"authors\":\"Maha Wybitul, H. Njago, Agata Luczkiewicz, H. Pihan\",\"doi\":\"10.17925/usn.2022.18.2.142\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Introduction: Multiple sclerosis (MS) is an immune-mediated neurodegenerative disease. Patients are commonly diagnosed when they are between 20 to 50 years and require life-long treatment. Appropriate treatment is complex and involves a wide range of professional disciplines and expertise. This multifariousness highlights the need for multidisciplinary MS care units that offer a comprehensive and well-managed treatment approach. Such care units would enable (1) time-efficient organization and coordination, (2) better inter-, intradisciplinary and patient communication, (3) neurologists, nurses and therapists specialized in MS and (4) formalized diagnostic workup procedures and protocols for the initiation and follow-up of disease-modifying therapies. Methods: The current single-centre pilot study evaluated such a multidisciplinary MS care unit by measuring patient satisfaction and quality of life prior to and after the reorganization of a Swiss clinical centre. Results: A significant improvement in patient satisfaction was seen after the reorganization of the Swiss clinical centre into an MS centre, and quality of life was maintained throughout. Conclusion: This study exemplifies the importance of MS-specialized care and encourages further longitudinal, large-scale multicentre studies.\",\"PeriodicalId\":90076,\"journal\":{\"name\":\"US neurology\",\"volume\":\"1 1\",\"pages\":\"\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2022-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"US neurology\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.17925/usn.2022.18.2.142\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"US neurology","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.17925/usn.2022.18.2.142","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0

摘要

简介:多发性硬化症(MS)是一种免疫介导的神经退行性疾病。患者通常在20至50岁之间被诊断出来,需要终身治疗。适当的治疗是复杂的,涉及广泛的专业学科和专门知识。这种多样性强调需要多学科的多发性硬化症护理单位,提供全面和管理良好的治疗方法。这样的护理单位将实现(1)高效的组织和协调,(2)更好的学科间、学科内和患者沟通,(3)专攻多发性硬化症的神经科医生、护士和治疗师,以及(4)正式的诊断检查程序和疾病改善治疗的开始和随访协议。方法:目前的单中心试点研究通过测量瑞士临床中心重组前后患者满意度和生活质量来评估这样一个多学科的MS护理单位。结果:在瑞士临床中心重组为MS中心后,患者满意度显著提高,生活质量始终保持不变。结论:本研究证明了ms专科护理的重要性,并鼓励进一步的纵向、大规模的多中心研究。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Patient Satisfaction in a Multidisciplinary Multiple Sclerosis Care Unit: A Swiss Single-centre Study
Introduction: Multiple sclerosis (MS) is an immune-mediated neurodegenerative disease. Patients are commonly diagnosed when they are between 20 to 50 years and require life-long treatment. Appropriate treatment is complex and involves a wide range of professional disciplines and expertise. This multifariousness highlights the need for multidisciplinary MS care units that offer a comprehensive and well-managed treatment approach. Such care units would enable (1) time-efficient organization and coordination, (2) better inter-, intradisciplinary and patient communication, (3) neurologists, nurses and therapists specialized in MS and (4) formalized diagnostic workup procedures and protocols for the initiation and follow-up of disease-modifying therapies. Methods: The current single-centre pilot study evaluated such a multidisciplinary MS care unit by measuring patient satisfaction and quality of life prior to and after the reorganization of a Swiss clinical centre. Results: A significant improvement in patient satisfaction was seen after the reorganization of the Swiss clinical centre into an MS centre, and quality of life was maintained throughout. Conclusion: This study exemplifies the importance of MS-specialized care and encourages further longitudinal, large-scale multicentre studies.
求助全文
通过发布文献求助,成功后即可免费获取论文全文。 去求助
来源期刊
自引率
0.00%
发文量
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
copy
已复制链接
快去分享给好友吧!
我知道了
右上角分享
点击右上角分享
0
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信