患有多发性硬化症的欧洲妇女对计划生育和生育能力缺乏准备和教育-我们如何改善患者教育?

Q4 Medicine
J. Manson
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引用次数: 0

摘要

多发性硬化(MS)是一种影响中枢神经系统的致残疾病。尽管这种疾病在育龄妇女中的发病率很高,但以前发现女性多发性硬化症患者通常不了解怀孕对多发性硬化症的影响,并且很少有关于多发性硬化症女性计划生育决策的研究。在这篇评论中,我们检查了最近由韦克菲尔德研究公司为梯瓦制药公司开展的一项多国研究的结果,该研究涉及1000名年龄在25-35岁之间的女性。在过去5年内被诊断为多发性硬化症复发的患者。这项调查抽样了来自以下五个国家的200名女性:德国、意大利、荷兰、西班牙和英国。这项调查的结果突出表明,欧洲患有多发性硬化症的妇女与保健专业人员(HCPs)之间缺乏关于计划生育的公开沟通,并表明向大多数被调查者提供的计划生育信息不足。我们讨论了计划生育对欧洲女性多发性硬化症患者的重要性,以及她们最关心的问题。此外,我们概述了计划生育问题如何与HCPs解决,并讨论了如何改善MS患者的计划生育教育。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
European Women With Multiple Sclerosis Feel Unprepared and Uneducated About Family Planning and Their Ability to Have Children – How Do We Improve Patient Education?
Multiple sclerosis (MS) is a disabling disease affecting the central nervous system. Despite the high frequency of this disease in women of childbearing age, it has previously been found that female patients with MS are often uninformed regarding the effects of pregnancy on MS and there is little available research on family planning decisions in females with MS. In this commentary we examine the results of a recent multi-country study, carried out by Wakefield Research for Teva Pharmaceuticals, of 1,000 women, aged 25–35 years, who were diagnosed with relapsing forms of MS (RMS) in the last 5 years. The survey sampled 200 women from each of the following five countries: Germany, Italy, the Netherlands, Spain and the United Kingdom. Results from this survey highlight a lack of open communication regarding family planning between women in Europe with MS and healthcare professionals (HCPs), and show that insufficient information on family planning is being provided to the majority of those surveyed. We discuss the importance of family planning for European women with MS, and their top concerns regarding this issue. In addition, we outline how family planning concerns are addressed with HCPs, and discuss how family planning education for patients with MS can be improved.
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来源期刊
European neurological review
European neurological review Medicine-Neurology (clinical)
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