准备育儿:葡萄牙慢性肾病儿童父母的护理做法

IF 1.1 3区社会学 Q3 FAMILY STUDIES

Families Relationships and Societies Pub Date : 2022-01-01 DOI:10.1332/204674321x16463025919528

Andréa Bruno de Sousa, A. Goes, Anette Wickström

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引用次数: 1

摘要

患有慢性肾脏疾病(CKD)的孩子的父母必须安全地进行先进的护理和治疗，同时允许孩子一些自由，并维持日常的养育和家庭任务。通过对葡萄牙CKD儿童的主要照顾者的访谈，我们研究了抚养CKD儿童的背景以及父母如何实践父母身份。该研究从育儿研究和儿童研究中获得灵感，并探讨了如何构建良好的父母关系。在主题分析的基础上，出现了三个核心主题:保护儿童、儿童参与治疗和责任转移。将限制生活的环境转变为对父母和孩子都很好的生活，这就是我们所说的“准备好的养育”。评估风险，支持孩子的自主性，并与社会规范相关，需要持续的警惕和调整，以及关于父母责任的谈判。

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Readiness parenting: practices of care by parents of children with chronic kidney disease in Portugal

Parents of a child with chronic kidney disease (CKD) must safely perform advanced care and treatment while at the same time allowing the child some freedom and maintaining everyday parenting and family tasks. Drawing on interviews with primary caregivers of children with CKD in Portugal, we examine the context of raising a child with CKD and how the parents practise their parenthood. The study takes inspiration from parenting studies and child studies and explores how good parenthood is constructed. Based on thematic analysis, three core themes emerged: protecting the child, involving the child in their treatment, and transferring responsibility. The transformation of life-limiting circumstances into a life that worked well for both parents and their child represents what we call ‘readiness parenting’. Assessing risks, supporting the child’s autonomy, and relating to social norms required constant vigilance and readjustments as well as negotiations about parental responsibility.

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来源期刊

Families Relationships and Societies FAMILY STUDIES-

CiteScore

2.10

自引率

14.30%

发文量

期刊介绍： Families, Relationships and Societies (FRS) is a vibrant social science journal advancing scholarship and debates in the field of families and relationships. It explores family life, relationships and generational issues across the life course. Bringing together a range of social science perspectives, with a strong policy and practice focus, it is also strongly informed by sociological theory and the latest methodological approaches. The title ''Families, Relationships and Societies'' encompasses the fluidity, complexity and diversity of contemporary social and personal relationships and their need to be understood in the context of different societies and cultures. International and comprehensive in scope, FRS covers a range of theoretical, methodological and substantive issues, from large scale trends, processes of social change and social inequality to the intricacies of family practices. It welcomes scholarship based on theoretical, qualitative or quantitative analysis. High quality research and scholarship is accepted across a wide range of issues. Examples include family policy, changing relationships between personal life, work and employment, shifting meanings of parenting, issues of care and intimacy, the emergence of digital friendship, shifts in transnational sexual relationships, effects of globalising and individualising forces and the expansion of alternative ways of doing family. Encouraging methodological innovation, and seeking to present work on all stages of the life course, the journal welcomes explorations of relationships and families in all their different guises and across different societies.