对痴呆症相关的耻辱感和家庭照顾者寻求直接支持作为照顾者压力、负担和幸福感之间中介关系的反思。

IF 3 3区 医学 Q1 COMMUNICATION
Health Communication Pub Date : 2024-11-01 Epub Date: 2023-10-24 DOI:10.1080/10410236.2023.2270248
Karen E Schlag, Anita L Vangelisti
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引用次数: 0

摘要

照顾患有阿尔茨海默病和相关痴呆症(ADRD)的亲属的要求很高,这可能会导致家庭护理负担和健康状况不佳。对ADRD患者的污名化也会影响照顾者的压力,而他们寻求支持的策略可能会减轻负担对他们健康的负面影响。为了检验假设的关系,本研究考虑了ADRD家庭污名的不同维度是否影响了受照顾者的行为症状与其家庭照顾者感知负担之间的联系,以及直接寻求支持是否解释了照顾者负担与幸福感之间的联系。家庭照顾者(n = 375)完成了Qualtrics调查。路径分析显示,ADRD行为症状可预测照顾者和非专业人员的污名形式。外行的耻辱感也介入了行为症状和照顾者负担之间。寻求直接支持在照顾者负担和幸福感之间起中介作用。研究结果强调了将污名纳入ADRD护理人员压力模型以及从网络和沟通角度研究护理人员健康的效用。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Reflections on Dementia-Related Stigma and Direct Support Seeking by Family Caregivers as Mediating Associations Between Caregiver Stress, Burden, and Well-Being.

The demanding nature of caring for relatives with Alzheimer's disease and related dementias (ADRD) can lead to family caregiver burden and poor health. The stigmatization of people with ADRD can also impact caregivers' stress, while their support-seeking strategies may mitigate negative impacts of burden on their health. To examine hypothesized relationships, the present study considered whether different dimensions of ADRD family stigma influenced the association between a care recipient's behavioral symptoms and their family caregiver's perceived burden and if direct support seeking explained a connection between caregiver burden and well-being. Family caregivers (n = 375) completed a Qualtrics survey. Path analysis revealed ADRD behavioral symptoms predicted both caregiver and layperson forms of stigma. Layperson stigma also intervened between behavioral symptoms and caregiver burden. Direct support seeking mediated the association between caregiver burden and well-being. Findings underscore the utility of including stigma within ADRD caregiver stress models and studying caregiver health from network and communication perspectives.

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来源期刊
CiteScore
8.20
自引率
10.30%
发文量
184
期刊介绍: As an outlet for scholarly intercourse between medical and social sciences, this noteworthy journal seeks to improve practical communication between caregivers and patients and between institutions and the public. Outstanding editorial board members and contributors from both medical and social science arenas collaborate to meet the challenges inherent in this goal. Although most inclusions are data-based, the journal also publishes pedagogical, methodological, theoretical, and applied articles using both quantitative or qualitative methods.
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