Benjamín Gómez-Díaz , Edgar Oswaldo Zamora-González , Antonio Miranda-Duarte , Bladimir Roque-Ramírez , Norma Alejandra Vázquez-Cárdenas , Georgina Martínez-Gómez , Jhoana Martín del Campo , Erick Castillo-Jáuregui , Ángel Rafael Castro-Navarro , Antonio Marín-Cruz , Stephanie Rosas-Maldonado , Paulina Elizabeth Valdez-Anguiano , Reyna Araceli Barrera-López , Luz Berenice López-Hernández
{"title":"评估墨西哥卫生保健提供者和卫生专业学生对罕见病的知识、观念、认识和态度","authors":"Benjamín Gómez-Díaz , Edgar Oswaldo Zamora-González , Antonio Miranda-Duarte , Bladimir Roque-Ramírez , Norma Alejandra Vázquez-Cárdenas , Georgina Martínez-Gómez , Jhoana Martín del Campo , Erick Castillo-Jáuregui , Ángel Rafael Castro-Navarro , Antonio Marín-Cruz , Stephanie Rosas-Maldonado , Paulina Elizabeth Valdez-Anguiano , Reyna Araceli Barrera-López , Luz Berenice López-Hernández","doi":"10.1016/j.rare.2023.100005","DOIUrl":null,"url":null,"abstract":"<div><p>Rare diseases (RDs) are serious and often fatal uncommon conditions with a high subjacent genetic origin. Since RD are not prevalent, knowledge regarding these diseases among health care providers and health students is scarce. The management of RD is often inadequate and precarious. Therefore, the aim of the present study is to assess the degree of knowledge, perceptions and attitudes of healthcare practitioners and students in Mexico. Herein we present a reliable questionnaire to assess the degree of knowledge, perceptions, awareness and attitudes of healthcare practitioners and students in Mexico with regard to RDs. The pilot study showed satisfactory levels of knowledge and significant differences in perceptions, awareness and attitudes among the study groups.</p></div>","PeriodicalId":101058,"journal":{"name":"Rare","volume":"1 ","pages":"Article 100005"},"PeriodicalIF":0.0000,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Assessing knowledge, perceptions, awareness and attitudes on rare diseases among health care providers and health students in Mexico\",\"authors\":\"Benjamín Gómez-Díaz , Edgar Oswaldo Zamora-González , Antonio Miranda-Duarte , Bladimir Roque-Ramírez , Norma Alejandra Vázquez-Cárdenas , Georgina Martínez-Gómez , Jhoana Martín del Campo , Erick Castillo-Jáuregui , Ángel Rafael Castro-Navarro , Antonio Marín-Cruz , Stephanie Rosas-Maldonado , Paulina Elizabeth Valdez-Anguiano , Reyna Araceli Barrera-López , Luz Berenice López-Hernández\",\"doi\":\"10.1016/j.rare.2023.100005\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><p>Rare diseases (RDs) are serious and often fatal uncommon conditions with a high subjacent genetic origin. Since RD are not prevalent, knowledge regarding these diseases among health care providers and health students is scarce. The management of RD is often inadequate and precarious. Therefore, the aim of the present study is to assess the degree of knowledge, perceptions and attitudes of healthcare practitioners and students in Mexico. Herein we present a reliable questionnaire to assess the degree of knowledge, perceptions, awareness and attitudes of healthcare practitioners and students in Mexico with regard to RDs. The pilot study showed satisfactory levels of knowledge and significant differences in perceptions, awareness and attitudes among the study groups.</p></div>\",\"PeriodicalId\":101058,\"journal\":{\"name\":\"Rare\",\"volume\":\"1 \",\"pages\":\"Article 100005\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-01-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Rare\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S2950008723000054\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"\",\"JCRName\":\"\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Rare","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2950008723000054","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
Assessing knowledge, perceptions, awareness and attitudes on rare diseases among health care providers and health students in Mexico
Rare diseases (RDs) are serious and often fatal uncommon conditions with a high subjacent genetic origin. Since RD are not prevalent, knowledge regarding these diseases among health care providers and health students is scarce. The management of RD is often inadequate and precarious. Therefore, the aim of the present study is to assess the degree of knowledge, perceptions and attitudes of healthcare practitioners and students in Mexico. Herein we present a reliable questionnaire to assess the degree of knowledge, perceptions, awareness and attitudes of healthcare practitioners and students in Mexico with regard to RDs. The pilot study showed satisfactory levels of knowledge and significant differences in perceptions, awareness and attitudes among the study groups.
求助内容：
应助结果提醒方式：
京公网安备 11010802042870号
