过渡——下一步

L. Pape, M. Oldhafer
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Unfortunately, there is a lack of national transition programs, mainly because most health systems are unwilling to finance the extra costs of transition, without considering that these “costs” will be an investment leading to fewer total health care costs for patients in the long run. Unfortunately, such evaluations have only been performed in single diseases up to now [1]. However, research in transition medicine has grown within the last few years. Published research initially presented experiences from local transitionprograms focused on single diseases and on the barriers of transition [2], but more recently there have been reports on diseaseindependent transition programs [3] and scientific evaluations of these have also begun. The first randomized trials in transition medicine have been initiated [4, 5] and transition guidelines from different national and international societies are now available [6–8]. Education programs for patients and parents have also been an area of research within the last few years [9, 10]. A Cochrane database analysishas recently reported that there is insufficient evidence to support interventions in transitionalmedicine and there is only low-grade evidence for a positive effect of educational programs, but it has not made any conclusions about the usefulness of transition programs themselves. The Cochrane authors conclude that there is considerable scope for the rigorous evaluation of other models of transitional care, reporting on clinical outcomes with longer term follow-up inorder toprovideevidence in this area [11]. Unfortunately, publication of transition science is often difficult. Many medical, organ-focused journals are not interested in public health issues and do not publish qualitative research, but neither is transition a focus in journals specializing in adolescent or public health. This leads to an urgent need for a publication/journal whose emphasis is solely on transition medicine. Over the past few years, the German Society of Transition Medicine has discussed this need and has now reached a decision to found a Journal of Transition Medicine, not only as the official society journal but also as a journal for researchersworking in transitionmedicineworldwide.We have decided on an open access model, linked to an experienced medical publisher and an established publication platform, in order to achieve three goals: First, to make the results of transition research easily and universally available, second to make publication uncomplicated for researchers, and third, to achieve rapid indexing in search engines such as PubMed and others. The journal aims to improve medical care for young people with chronic disease throughout the pediatric to adult medicine transitional period. Submissions are invited, not only from medical doctors, but from all disciplines working with or committed to improving transitional care, e.g. sociologists, psychologists, social workers, nurses or health service researchers. We are looking forward to the establishment of the Journal of Transition Medicine as a scientific arena for transition science research worldwide. On the journal home page you can see the wide range of manuscript types that we will accept. Our editorial board is made up of highly experienced transition medicine physicians from every continent. We invite societies other than the German Society of Transition Medicine to join us in our efforts to establish this unique journal, which will follow a fast and complete peer review process to maintain scientific quality and ensure rapid publication of accepted articles. Submission is free for members of the German Society of Transition Medicine and for invited articles, and a modest e500 for all other submissions. 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However, research in transition medicine has grown within the last few years. Published research initially presented experiences from local transitionprograms focused on single diseases and on the barriers of transition [2], but more recently there have been reports on diseaseindependent transition programs [3] and scientific evaluations of these have also begun. The first randomized trials in transition medicine have been initiated [4, 5] and transition guidelines from different national and international societies are now available [6–8]. Education programs for patients and parents have also been an area of research within the last few years [9, 10]. A Cochrane database analysishas recently reported that there is insufficient evidence to support interventions in transitionalmedicine and there is only low-grade evidence for a positive effect of educational programs, but it has not made any conclusions about the usefulness of transition programs themselves. The Cochrane authors conclude that there is considerable scope for the rigorous evaluation of other models of transitional care, reporting on clinical outcomes with longer term follow-up inorder toprovideevidence in this area [11]. Unfortunately, publication of transition science is often difficult. Many medical, organ-focused journals are not interested in public health issues and do not publish qualitative research, but neither is transition a focus in journals specializing in adolescent or public health. This leads to an urgent need for a publication/journal whose emphasis is solely on transition medicine. Over the past few years, the German Society of Transition Medicine has discussed this need and has now reached a decision to found a Journal of Transition Medicine, not only as the official society journal but also as a journal for researchersworking in transitionmedicineworldwide.We have decided on an open access model, linked to an experienced medical publisher and an established publication platform, in order to achieve three goals: First, to make the results of transition research easily and universally available, second to make publication uncomplicated for researchers, and third, to achieve rapid indexing in search engines such as PubMed and others. The journal aims to improve medical care for young people with chronic disease throughout the pediatric to adult medicine transitional period. Submissions are invited, not only from medical doctors, but from all disciplines working with or committed to improving transitional care, e.g. sociologists, psychologists, social workers, nurses or health service researchers. We are looking forward to the establishment of the Journal of Transition Medicine as a scientific arena for transition science research worldwide. On the journal home page you can see the wide range of manuscript types that we will accept. Our editorial board is made up of highly experienced transition medicine physicians from every continent. We invite societies other than the German Society of Transition Medicine to join us in our efforts to establish this unique journal, which will follow a fast and complete peer review process to maintain scientific quality and ensure rapid publication of accepted articles. Submission is free for members of the German Society of Transition Medicine and for invited articles, and a modest e500 for all other submissions. 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引用次数: 0

摘要

在过去的几年里,从儿科到成人护理的转变越来越受到许多医学亚专业的关注。实施当地过渡计划的主要驱动力是儿科医生,他经常看到患者在转为成人医学后无法找到足够的持续护理。对于治疗成年患者的医生来说,转移后的患者数量很少,因此转移的问题通常并不显著。大多数情况下,过渡计划的成功取决于个人的“过渡拥护者”,他们在结构化的过渡过程中积极主动,如果没有他们,长期过渡结构的实施将非常困难。不幸的是,缺乏国家过渡计划,主要是因为大多数卫生系统不愿意为过渡的额外成本提供资金,而没有考虑到从长远来看,这些“成本”将是一项投资,从而降低患者的医疗保健总成本。不幸的是,到目前为止,这种评估只在单一疾病中进行[1]。然而,过渡医学的研究在过去几年中有所增长。已发表的研究最初介绍了当地过渡计划的经验,重点是单一疾病和过渡障碍[2],但最近有关于疾病依赖性过渡计划的报告[3],也开始对这些计划进行科学评估。过渡医学的第一个随机试验已经启动[4,5],来自不同国家和国际社会的过渡指南现在可用[6-8]。在过去几年里,针对患者和家长的教育项目也是一个研究领域[9,10]。Cochrane数据库的一项分析最近报告称,没有足够的证据支持过渡医学的干预措施,也只有低级别的证据表明教育计划具有积极效果,但它还没有对过渡计划本身的有用性得出任何结论。Cochrane的作者得出结论,对其他过渡期护理模式进行严格评估还有相当大的空间,通过长期随访报告临床结果,以便在这一领域提供证据[11]。不幸的是,过渡科学的出版往往很困难。许多以器官为重点的医学期刊对公共卫生问题不感兴趣,也不发表定性研究,但转型也不是专门研究青少年或公共卫生的期刊的重点。这导致迫切需要一份只强调过渡医学的出版物/期刊。在过去的几年里,德国过渡医学学会讨论了这一需求,现在决定创办《过渡医学杂志》,不仅作为官方学会期刊,而且作为全球过渡医学研究人员的期刊。为了实现三个目标,我们决定采用一种开放获取模式,与一家经验丰富的医学出版商和一个成熟的出版平台相联系:第一,使过渡研究的结果易于普及,第二,使研究人员的出版不复杂,第三,在PubMed等搜索引擎中实现快速索引。该杂志旨在改善从儿科到成人医学过渡时期对患有慢性病的年轻人的医疗护理。不仅邀请医生,还邀请所有致力于或致力于改善过渡期护理的学科,如社会学家、心理学家、社会工作者、护士或卫生服务研究人员提交意见。我们期待着《过渡医学杂志》的成立,将其作为全球过渡科学研究的科学舞台。在期刊主页上,你可以看到我们将接受的各种手稿类型。我们的编辑委员会由来自各个大陆的经验丰富的过渡医学医生组成。我们邀请德国过渡医学学会以外的学会加入我们的努力,建立这本独特的期刊,该期刊将遵循快速完整的同行评审过程,以保持科学质量,并确保快速发表公认的文章。德国过渡医学学会的成员和受邀的文章可以免费提交,所有其他提交的文章都可以获得500欧元。我们欢迎您对过渡医学的最佳研究,并非常期待您对如何建立和改进我们的新期刊,以及过渡医学本身的想法。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Transition – the next step
The transition from pediatric to adult care has come increasingly under the spotlight in many subspecialties in medicine in the last few years. The main driving force for the implementation of local transition programs is the pediatrician who regularly sees patients unable to find adequate continuous care after transfer to adult medicine. For physicians treating adult patients the number of patients after transfer is small, so consequently the problem of transition is frequently unremarked. Most often, the success of a transition programdepends on individual “transition champions” who are proactive in the structured transition process and without whom implementation of long-lasting transition structures is very difficult. Unfortunately, there is a lack of national transition programs, mainly because most health systems are unwilling to finance the extra costs of transition, without considering that these “costs” will be an investment leading to fewer total health care costs for patients in the long run. Unfortunately, such evaluations have only been performed in single diseases up to now [1]. However, research in transition medicine has grown within the last few years. Published research initially presented experiences from local transitionprograms focused on single diseases and on the barriers of transition [2], but more recently there have been reports on diseaseindependent transition programs [3] and scientific evaluations of these have also begun. The first randomized trials in transition medicine have been initiated [4, 5] and transition guidelines from different national and international societies are now available [6–8]. Education programs for patients and parents have also been an area of research within the last few years [9, 10]. A Cochrane database analysishas recently reported that there is insufficient evidence to support interventions in transitionalmedicine and there is only low-grade evidence for a positive effect of educational programs, but it has not made any conclusions about the usefulness of transition programs themselves. The Cochrane authors conclude that there is considerable scope for the rigorous evaluation of other models of transitional care, reporting on clinical outcomes with longer term follow-up inorder toprovideevidence in this area [11]. Unfortunately, publication of transition science is often difficult. Many medical, organ-focused journals are not interested in public health issues and do not publish qualitative research, but neither is transition a focus in journals specializing in adolescent or public health. This leads to an urgent need for a publication/journal whose emphasis is solely on transition medicine. Over the past few years, the German Society of Transition Medicine has discussed this need and has now reached a decision to found a Journal of Transition Medicine, not only as the official society journal but also as a journal for researchersworking in transitionmedicineworldwide.We have decided on an open access model, linked to an experienced medical publisher and an established publication platform, in order to achieve three goals: First, to make the results of transition research easily and universally available, second to make publication uncomplicated for researchers, and third, to achieve rapid indexing in search engines such as PubMed and others. The journal aims to improve medical care for young people with chronic disease throughout the pediatric to adult medicine transitional period. Submissions are invited, not only from medical doctors, but from all disciplines working with or committed to improving transitional care, e.g. sociologists, psychologists, social workers, nurses or health service researchers. We are looking forward to the establishment of the Journal of Transition Medicine as a scientific arena for transition science research worldwide. On the journal home page you can see the wide range of manuscript types that we will accept. Our editorial board is made up of highly experienced transition medicine physicians from every continent. We invite societies other than the German Society of Transition Medicine to join us in our efforts to establish this unique journal, which will follow a fast and complete peer review process to maintain scientific quality and ensure rapid publication of accepted articles. Submission is free for members of the German Society of Transition Medicine and for invited articles, and a modest e500 for all other submissions. We welcome your best research in transitionmedicine for consideration and very much look forward to your ideas as to how to establish and improve our new journal – and, indeed, transition medicine itself.
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