新加坡华人轻度痴呆患者及其家庭照顾者对临终关怀的展望:一项定性研究的结果

IF 0.4 Q3 MEDICINE, GENERAL & INTERNAL
Dennis Seow, Amanda Pang, S. Ho, Chetna Malhotra
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引用次数: 0

摘要

目前,人们对痴呆症患者及其护理人员如何看待临终关怀(EOL)知之甚少。因此,我们旨在研究和了解轻度痴呆患者及其家庭照顾者对EOL护理的看法。我们对新加坡的25名轻度痴呆患者及其家庭照顾者进行了定性深入访谈。讨论了患者及其家属对疾病的理解、患者对EOL护理的偏好以及护理者对患者的关注。对访谈记录的结果进行了专题分析。我们确定了以人为本的EOL护理的三个主要主题:对认知能力下降和死亡的规划,支持患者在家中平静地死去,以及支持家庭照顾者应对患者的病情。大多数病人希望平静地死去,在家中得到照顾。然而,他们不愿意开始讨论他们未来的医疗保健,似乎否认他们未来可能会下降的认知能力。所有接受采访的家庭照顾者都有明显的照顾者负担。结果突出了三个重要组成部分,将加强以患者为中心的轻度痴呆患者EOL护理的交付。基于这些组成部分的战略可以使家庭照顾者和卫生保健提供者能够规划并提供符合患者意愿的以患者为中心的EOL护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Perspectives of Singaporean Chinese patients with mild dementia and their family caregivers towards end-of-life care: Results from a qualitative study
Currently, there is little understanding of how patients with dementia and their caregivers view end-of-life (EOL) care. We thus aimed to study and understand the perception of EOL care by patients with mild dementia and their family caregivers. We conducted qualitative in-depth interviews with 25 patients with mild dementia and their family caregivers belonging to Chinese ethnicity in Singapore. Patients’ and family caregivers’ understanding of illness, patients’ preferences for EOL care and caregiver concerns for the patients were discussed. Thematic analysis was conducted on the transcribed results of the interviews. We identified three main themes of person-centred EOL care: planning for cognitive decline and death, supporting patients to die peacefully at home, and supporting family caregivers to cope with patient’s condition. Most patients wanted to die peacefully and be cared for at their home. However, they were reluctant to initiate discussions regarding their future health care and seemed to be in denial that they may decline cognitively in future. Caregiver burden was noticeable for all family caregivers interviewed. . Results highlight three important components that would enhance the delivery of patient-centred EOL care in patients with mild dementia. Strategies based on these components can enable family caregivers and health care providers to plan for and provide patient-centred EOL care concordant with patients’ wishes.
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来源期刊
Proceedings of Singapore Healthcare
Proceedings of Singapore Healthcare MEDICINE, GENERAL & INTERNAL-
CiteScore
0.90
自引率
0.00%
发文量
42
审稿时长
15 weeks
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