法国患者报告的神经内分泌肿瘤的诊断、治疗和负担经验

IF 1.2
C. Lombard-Bohas, C. Cao, J. Metges, Philippe Ruszniewski, Denis Smith, R. Guimbaud, C. Lepage, Ron Hollander, G. Goldstein, E. Wolin, Alexandre Santos, E. Baudin
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引用次数: 1

摘要

背景:法国对神经内分泌肿瘤(NET)患者的经验缺乏了解。材料和方法:进行了一项患者调查,收集了有关诊断、疾病影响/管理和意识的信息。分析了法国受访者的数据,并将其与美国的数据进行了比较。结果:关键主题包括诊断延迟、对生活质量的负面影响、患者获得NET医学专家和治疗的机会,以及有关NET和治疗的信息。法国和美国在NET诊断方面存在显著差异。结论:这项调查强调了法国NET患者所经历的巨大负担,以及法国和美国患者体验的差异,这可能是由于不同的医疗保健和社会制度造成的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
French patient-reported experience of diagnosis, management and burden of neuroendocrine tumors
Background: There is a lack of knowledge regarding the experience of patients with neuroendocrine tumors (NET) in France. Materials & methods: A patient survey that captured information on diagnosis, disease impact/management and awareness was conducted. Data of respondents from France were analyzed and compared with US data as a reference. Results: Key topics included delays in diagnosis, negative impact on quality of life, patient access to NET medical experts and treatments, and information on NET and treatments. Significant differences were observed between France and the USA regarding NET diagnosis. Conclusion: This survey highlights the considerable burden experienced by patients in France with NET and differences in patient experience between France and the USA that may result from different healthcare and social systems.
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来源期刊
自引率
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审稿时长
13 weeks
期刊介绍: International Journal of Endocrine Oncology is a quarterly, peer-reviewed journal that helps the clinician to keep up to date with best practice in this fast-moving field. The journal highlights significant advances in basic and translational research, and places them in context for future therapy. The journal presents the latest research findings in diagnosis and management of endocrine cancer, together with authoritative reviews, cutting-edge editorials and perspectives that highlight hot topics and controversy in the field. Independent drug evaluations assess newly approved medications and their role in clinical practice. The journal welcomes the unsolicited submission of article proposals and original research manuscripts.
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