这个故事在面对重症时提升生命的意义

Kjersti Sunde Mæhre
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引用次数: 1

摘要

在我的博士学位(Mæhre, 2017)中,基于协调改革,我对养老院强化病房的五名危重患者进行了定性访谈。访谈的目的是增加对病房患者经历的了解,以及他们所面临的挑战和对援助的需求。研究方法是解释学-现象学方法。这篇文章是基于一个病人的采访,这已经被改写为一个叙述。这种叙述强调了病人是如何与她的疾病作斗争的,以及她需要被当作一个人来看待,而不是从诊断的角度来理解。疾病的叙述成为她生活故事的一部分。这篇文章强调了在面对严重疾病时叙事的机会。故事揭示了一个改变了的生活环境,尽管身患重病,如何给生活增添勇气和快乐,但也如何导致绝望、怀疑和不确定。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Fortellingens betydning for å fremme livsmotet i møte med alvorlig sykdom
The importance of the story to promote hope and life courage in the face of serious illnessIn connection with my PhD (Mæhre, 2017), I conducted qualitative interviews with five critically ill patients in an enhanced ward of a nursing home, based on the Coordination Reform. The purpose of the interviews was to increase understanding of patient experiences of the ward, and their perceived challenges and needs for assistance. The research method was a hermeneutic-phenomenological approach. The essay is based on one of the patient interviews, which has been rewritten as a narrative. This narrative emphasizes how the patient has fought against her illness, and her need to be seen as herself as a person and not understood in terms of a diagnosis. The illness narrative becomes part of her life story. The article highlights opportunities for narratives in the face of serious illness. The narrative reveals how a changed life situation, despite severe illness, can add courage and joy to life, but also how it can lead to hopelessness, doubt, and uncertainty.
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