智障人士母亲的行动研究:将减少负担作为一项生活项目

Sarah Cecílio Fonseca, Maria Nivalda de Carvalho-Freitas, Beatriz André Alves
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引用次数: 1

摘要

本文旨在报告对智障母亲群体进行的行动研究,旨在为提高生活质量和重新意义他们的生活项目做出贡献。行动研究分两组进行,其中一组在八个月内举行了24次会议,另一组在四个月内召开了12次会议。所有会议都是通过系统的观察记录下来的。实验结束后,还对内容和主要群体现象进行了分析,并对变化感知进行了评估。在研究之初,由于孩子的能力方面几乎没有遇到一些困难,母亲们在生活计划方面存在阻力。也就是说,据观察,母亲几乎不可能让孩子在日常生活中发展自主性和独立性,导致他们在照顾孩子时负担过重。因此,行动研究的重点是讨论能够产生自主性的具体活动,考虑到儿童的局限性和可能性以及与母亲主观经历有关的问题,并以《独立生活技能清单》为触发因素。研究发现,反思孩子的日常活动,激励孩子获得更大独立性的方式,以及可以用来让孩子发展某些行为的策略,除了减少过载之外,也是母亲的一项生活计划。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Investigação-ação com mães de pessoas com deficiência intelectual: a redução da sobrecarga como um projeto de vida
The article aims to report action research conducted with groups of mothers of people with intellectual disabilities, aiming to contribute to the improvement in the quality of life and the re - signification of their life projects. The action research was fulfilled with two groups, and in one of them 24 meetings were held during eight months, and in the other, 12 meetings were held during four months. All the meetings were recorded through systematic observations. An analysis of content and main group phenomena, as well as evaluation of perception of change, after completion of the experiment was also developed. At the beginning of the research, there was resistance on the part of the mothers in relation to the project of life as a consequence of little some difficulties in relation to the capacity their children.That is, it was observed that the mothers offered little possibilities for their children to develop  autonomy and independence for activities of the daily life, causing them to be overloaded while caregivers. Thus, the focus of the action research was to discuss concrete activities that could generate autonomy, considering the limits and possibilities of the children and questions related to the subjective experiences of the mothers, taking as a trigger the Inventory of Independent Living Skills. It was found that the reflection on the daily activities of the children, on ways of stimulation for greater independence and on strategies that could be used for the child to develop certain behavior, besides reducing the overload, is a life project for mothers.
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