乳腺癌妇女在专业和同行领导的在线支持团体中表达的战斗精神:对结果的影响

M. Lieberman, S. Lepore
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引用次数: 1

摘要

目的:斗志是否能减少乳腺癌(BC)患者的抑郁?方法:与以往使用问卷调查的研究不同,我们通过分析BC支持小组的互动来评估战斗精神。研究人员对三个在线小组进行了研究:同步的专业小组(癌症之外的生活),异步的专业小组(知心伙伴)和异步的同行小组(同行公告板)。这些样本主要是高加索人,已婚,受过高等教育,患有早期癌症。我们使用了内容分析程序DTSearch来测量群组中表达的战斗词。采用线性回归检验打架词与后续抑郁的关系,控制基线抑郁和总字数。我们还比较了样本中表达的打架词的数量。结果:我们发现,在所有样本中,将癌症视为一场战斗或战斗会导致抑郁降低的观点是不成立的。与专业领导的小组相比,同龄人小组的争吵次数是小组的两倍。结论:以往的研究和本研究都强有力地支持零假设。我们基于战斗精神的行为测量的发现确实增加了之前的研究结果。不幸的是,外行人对癌症患者的普遍看法是,没有斗志意味着心理上的无能。它传达的信息是“勇敢善良的人战胜了癌症,而懦弱无能的人却让癌症杀死了他们”。这种观点会给已经面临困难疾病的女性带来内疚、自我鞭笞和压力。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Fighting spirit expressed by women with breast cancer in professional-and peer-led online support groups: effects on outcomes
Objective: Does fighting spirit reduce depression in women with breast cancer (BC)? Methods: Unlike previous studies using questionnaires, we assessed fighting spirit by analyzing interaction in BC support groups. Three online groups were studied: synchronous professionally led groups (Life Beyond Cancer), asynchronous professionallyled groups (Bosom Buddies) and asynchronous peer-led bulletin board groups (Peer Bulletin Boards). The samples were predominantly Caucasian, married, highly educated, and had early stage cancer. We used a content analysis program, DTSearch, to measure fighting words expressed in the groups. Linear regression was used to examine the relation between fighting words and follow-up depression, controlling for baseline depression and total word count. We also compared samples on the number of fight words expressed. Results: We found that viewing their cancer as a fight or battle would result in lowered depression was disconfirmed in all samples. The peer groups had twice as many fight words compared to professionally led groups. Conclusion: Previous studies as well as the current one strongly support the null hypothesis. Our finding based on a behavioral measure of fighting spirit does add to previous studies results. Unfortunately the common lay perspective for cancer sufferers is that not having fighting spirit would mean a psychological incapacity. The message is that “brave and good people defeat cancer and that cowardly and undeserving people allow it to kill them”. This view can create guilt, self flagellation and stress in woman already facing a difficult disease.
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