透析患者疼痛的患病率和生活经验

Ivy Moore, P. Byrne, N. Ilic, Jenny Heng-Chen Chen, K. Lambert
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摘要

(1)背景:疼痛是与肾衰竭相关的一种普遍的衰弱症状。然而,疼痛对生活质量的影响尚不清楚。我们的目的是确定受疼痛影响的透析患者的患病率、严重程度和特征,并探索疼痛的生活经历(2)方法:对接受血液透析的患者进行横断面调查,或通过电话对在单一三级中心接受腹膜和家庭血液透析的患者进行调查。采用专题分析对开放式问题进行分析。(3)结果:共收到131份问卷,回复率为66.8%。大多数患者接受血液透析(87.0%)。92% (n = 121)的患者存在疼痛,62% (n = 81)的患者报告疼痛严重到难以忍受。常见的疼痛部位为关节、肌肉痉挛、头痛、瘘管痛、非特异性背痛和神经病变。从主题分析中得出的首要主题是疼痛是一种“使人衰弱和可接受的负担”(4)结论:疼痛在透析患者中非常普遍,严重且使人衰弱。卫生保健提供者有必要积极主动地关注疼痛的管理。需要更多的研究来确定有效的治疗方法来减轻肾衰竭患者的疼痛负担和改善生活质量。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Prevalence and Lived Experience of Pain in People Undertaking Dialysis
(1) Background: Pain is a prevalent and debilitating symptom associated with kidney failure. However, the impact of pain on quality of life remains unclear. We aimed to identify the prevalence, severity and characteristics of people undertaking dialysis impacted by pain and explore the lived experience of pain (2) Methods: A cross-sectional survey was administered to people undertaking haemodialysis or via telephone to those undertaking peritoneal and home haemodialysis in a single tertiary centre. Open-ended questions were analysed using thematic analysis. (3) Results: Responses were received from 131 participants (response rate 66.8%). Most were undergoing haemodialysis (87.0%). Pain was present in 92% (n = 121) of patients with 62% (n = 81) reporting pain as severe to excruciating. Common sites of pain were joints, muscle cramps, headaches, fistula pain, non-specific back pain and neuropathy. The overarching theme from the thematic analysis was that pain was a “debilitating and accepted burden” (4) Conclusions: Pain is highly prevalent, severe and debilitating in those on dialysis. There is a need for health care providers to be proactive and attentive to the management of pain. More research is needed to identify effective treatment approaches to decrease pain burden and improve the quality of life in those with kidney failure.
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