Facebook上1型糖尿病的疾病管理:一项观察性研究

Vibeke Grothen, Liv MariaHadberg Hauschildt, I. Poulsen
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引用次数: 0

摘要

这项研究旨在调查用户参与一个为一群1型糖尿病患者创建和运营的Facebook小组的观点。数据是通过对丹麦1型糖尿病患者的Facebook小组的实地观察收集的,并使用归纳内容分析进行分析。分析得出三个主题:(1)糖尿病在线社区的疾病处理;(2)糖尿病在线社区的互助培育;(3)糖尿病在线社区的无声互动规范。调查指出,Facebook群组是处理1型糖尿病患者生活的有用手段。由此看来,在小组中共享的基于经验的知识与卫生专业知识同样重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Sygdomshåndtering af diabetes type 1 på Facebook: Et observationsstudie
➤ This study sets out to investigate the users’ perspective on participating in a Facebook group created for and run by a group of people diagnosed with type 1 diabetes. Data was collected using field observations from a Danish Facebook group for people diagnosed with type 1 diabetes and analyzed using an inductive content analysis. The analysis resulted in three themes: (1) Handling sickness in an online community for diabetes, (2) Cultivation of a mutual online diabetes community, and (3) The silent norms for interaction in an online community of diabetes. The investigation points to the Facebook group being useful as a means to handle life with type 1 diabetes. It appears that the experience-based knowledge, which is shared in the group, is just as important as the health professional knowledge.
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