从历史的角度看非定向性作为人类遗传咨询的主导范畴

IF 0.8 4区生物学 Q4 GENETICS & HEREDITY

Medizinische Genetik Pub Date : 2022-09-22 eCollection Date: 2022-10-01 DOI:10.1515/medgen-2022-2148

F Söhner, V Rolfes, W Hofmann, K Zerres, H Fangerau, M Krischel

{"title":"从历史的角度看非定向性作为人类遗传咨询的主导范畴","authors":"F Söhner, V Rolfes, W Hofmann, K Zerres, H Fangerau, M Krischel","doi":"10.1515/medgen-2022-2148","DOIUrl":null,"url":null,"abstract":"In this article we describe and analyse the issue of non-directivity in human genetic counselling in Germany between 1970 and 2010 based on printed sources and oral history interviews. The focus is on the extent to which the ethical aspects in genetic counselling were debated among human geneticists and to what extent aspects of non-directivity were discussed.As the results show, it was not only in retrospect that experts attributed great importance to the autonomy of those seeking advice and rejected \"directive\" advice, at least in public positions. They considered ethical justification to be central here.","PeriodicalId":48632,"journal":{"name":"Medizinische Genetik","volume":"34 1","pages":"233-239"},"PeriodicalIF":0.8000,"publicationDate":"2022-09-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11006328/pdf/","citationCount":"0","resultStr":"{\"title\":\"[Non-directivity as a guiding category in human genetic counselling in a historical perspective].\",\"authors\":\"F Söhner, V Rolfes, W Hofmann, K Zerres, H Fangerau, M Krischel\",\"doi\":\"10.1515/medgen-2022-2148\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"In this article we describe and analyse the issue of non-directivity in human genetic counselling in Germany between 1970 and 2010 based on printed sources and oral history interviews. The focus is on the extent to which the ethical aspects in genetic counselling were debated among human geneticists and to what extent aspects of non-directivity were discussed.As the results show, it was not only in retrospect that experts attributed great importance to the autonomy of those seeking advice and rejected \\\"directive\\\" advice, at least in public positions. They considered ethical justification to be central here.\",\"PeriodicalId\":48632,\"journal\":{\"name\":\"Medizinische Genetik\",\"volume\":\"34 1\",\"pages\":\"233-239\"},\"PeriodicalIF\":0.8000,\"publicationDate\":\"2022-09-22\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11006328/pdf/\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Medizinische Genetik\",\"FirstCategoryId\":\"99\",\"ListUrlMain\":\"https://doi.org/10.1515/medgen-2022-2148\",\"RegionNum\":4,\"RegionCategory\":\"生物学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"2022/10/1 0:00:00\",\"PubModel\":\"eCollection\",\"JCR\":\"Q4\",\"JCRName\":\"GENETICS & HEREDITY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Medizinische Genetik","FirstCategoryId":"99","ListUrlMain":"https://doi.org/10.1515/medgen-2022-2148","RegionNum":4,"RegionCategory":"生物学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2022/10/1 0:00:00","PubModel":"eCollection","JCR":"Q4","JCRName":"GENETICS & HEREDITY","Score":null,"Total":0}

引用次数: 0

摘要

摘要本文在印刷资料和口述历史访谈的基础上，描述和分析了1970年至2010年德国人类基因咨询的非方向性问题。特别是，重点将放在遗传咨询专家对伦理问题的科学和社会论述的理解程度，以及对非指导性咨询的各个方面的讨论程度。研究结果表明，专家们不仅非常重视那些寻求建议的人的自主权，而且拒绝“指示性”建议，至少在公共职位上是这样。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

查看原文本刊更多论文

[Non-directivity as a guiding category in human genetic counselling in a historical perspective].

In this article we describe and analyse the issue of non-directivity in human genetic counselling in Germany between 1970 and 2010 based on printed sources and oral history interviews. The focus is on the extent to which the ethical aspects in genetic counselling were debated among human geneticists and to what extent aspects of non-directivity were discussed.As the results show, it was not only in retrospect that experts attributed great importance to the autonomy of those seeking advice and rejected "directive" advice, at least in public positions. They considered ethical justification to be central here.

求助全文

通过发布文献求助，成功后即可免费获取论文全文。去求助

来源期刊

Medizinische Genetik Medicine-Genetics (clinical)

CiteScore

1.40

自引率

9.10%

发文量

审稿时长

>12 weeks

期刊介绍： medizinischegenetik is a scientific journal that is owned and published by the German Society of Human Genetics e.V. since 1989. The journal was founded by Prof. Jan Murken, München. Self-published until 2006, from 2007-2019 published at Springer Verlag and since 2020 at De Gruyter. medizinischegenetik serves education and training among colleagues, the interdisciplinary exchange of knowledge in all areas of human genetics in clinics, practice, research and teaching. Each issue of the quarterly journal deals with a focus that provides a comprehensive overview of current developments in specific clinical pictures, technical developments and therapeutic approaches. All reviews are written in English language. The journal thus creates a platform for the international exchange of knowledge and increased awareness of German research activities in the scientific community. In addition, medizinischegenetik contains information on activities in its own subject in the German-language section. This includes conference reports, association announcements, personnel matters, statements and guidelines. With health policy questions, historical retrospectives and comments on current developments, the profession takes a stand on human genetic issues in Germany, Austria and Switzerland.