毛细支气管炎相关家长信息需求与偏好的定性研究

CMAJ open Pub Date : 2019-10-01 DOI:10.9778/cmajo.20190092
Alyson Campbell, L. Hartling, Samantha Louie-Poon, S. Scott
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引用次数: 13

摘要

背景支气管炎影响着超过三分之一的2岁以下儿童,会给父母带来巨大的焦虑,导致他们寻求如何照顾生病孩子的信息。我们的定性研究的目的是探讨父母对毛细支气管炎患儿的信息需求和偏好。方法我们采用定性描述性方法。参与者于2017年10月1日至2018年3月15日从埃德蒙顿的Stollery儿童医院急诊科通过有目的的抽样方式招募。进行了个别的半结构化访谈。结果如果招募了三位家长参与,其中30位在4次联系尝试后无法联系到,8位被拒绝。因此,有15名家长参加(16名儿童)。确定了三个主要主题:1)父母对毛细支气管炎的信息需求,2)父母首选的信息来源,3)父母首选信息传递格式。参与者表示,他们希望并需要各种形式的可信、易于理解的细支气管炎信息,尤其是直接从医疗保健专业人员或循证网站获得的有价值的信息。解释本研究提供了有关父母对儿童毛细支气管炎信息需求的重要信息。识别父母想要和重视的与急性儿科疾病相关的信息,对于为父母制定反映以患者为中心的创新教育方法至关重要。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Parents' information needs and preferences related to bronchiolitis: a qualitative study.
BACKGROUND Bronchiolitis affects more than one-third of children less than age 2 years and can cause substantial anxiety for parents, leading them to seek information on how to care for their sick child. The aim of our qualitative study was to explore the information needs and preferences of parents caring for a child with bronchiolitis. METHODS We used a qualitative descriptive approach. Participants were recruited by means of purposive sampling from Oct. 1, 2017, to Mar. 15, 2018 from the Stollery Children's Hospital emergency department, a specialized pediatric emergency department in Edmonton. Individual semistructured interviews were conducted. RESULTS Fifty-three parents were recruited to participate, of whom 30 could not be reached after 4 contact attempts and 8 refused. Thus, 15 parents participated (16 children). Three major themes were identified: 1) parents' information needs about bronchiolitis, 2) parents' preferred information sources and 3) parents' preferred information delivery formats. Participants indicated that they want and require credible, easy-to-understand information about bronchiolitis in a variety of formats, and especially valued information obtained directly from a health care professional or an evidence-based website. INTERPRETATION This study provides important information about parents' information needs concerning bronchiolitis in children. Identifying the information that parents want and value in relation to acute pediatric illnesses is imperative to developing innovative educational approaches for parents that reflect patient-centred care.
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