自闭症患者兄弟姐妹寻求在线支持的现象学内容分析

IF 1.3 Q3 Psychology

Journal of Family Psychotherapy Pub Date : 2017-11-28 DOI:10.1080/08975353.2017.1395256

Rachael A. Dansby, Brie A. Turns, J. Whiting, J. Crane

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引用次数: 16

摘要

摘要随着自闭症谱系障碍诊断率的急剧上升，越来越多的家庭成员开始照顾和抚养自闭症患者。尽管研究调查了父母养育自闭症儿童的经历，但还需要更多关于神经典型兄弟姐妹经历的知识。了解兄弟姐妹经历的一种方法是通过在线同伴论坛分享他们自己的回忆。这种现象学内容分析的目的是了解与患有自闭症谱系障碍的兄弟姐妹一起长大的神经典型成年人在网上寻求支持时的未经过滤的经历。对在线博客文章的二次分析产生了四个主题：独特的家庭关系；复杂的情感体验；影响生活轨迹的自闭症；一系列应对策略。研究结果为研究这些家庭的专业人员和研究自闭症的研究人员提供了有用的启示。

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A phenomenological content analysis of online support seeking by siblings of people with autism

ABSTRACT With the sharp increase in diagnosis rates of autism spectrum disorder, more family members are caring for and being raised with individuals with autism. Although research has examined parents’ experiences of raising a child with autism, more knowledge is needed regarding neuro-typical siblings’ experiences. One way to understand siblings’ experiences is to hear their own recollections as shared through online peer forums. The purpose of this phenomenological content analysis was to understand the unfiltered experiences of neuro-typical adults who grew up with a sibling with autism spectrum disorder as they sought support online. Secondary analysis of online blog posts generated four themes: Unique family relationships; Complex spectrum of emotional experiences; Autism influencing life trajectories; A spectrum of coping strategies. Results provide useful implications for professionals working with these families and for researchers studying autism.

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来源期刊

Journal of Family Psychotherapy PSYCHOLOGY, CLINICAL-

CiteScore

1.90

自引率

0.00%

发文量

期刊介绍： Designed with the practicing clinician in mind, the Journal of Family Psychotherapy features a case study orientation that makes for very interesting reading. Highlights include: •Case Studies: Focused studies of a single case seen in family psychotherapy, illustrating the etiology, maintenance, and/or process of change of the problem. •Program Reports: Descriptions of treatment programs that have been used successfully to treat specific problems or new orientations used generally in family therapy. Clinical case examples are included.