生活和叙述障碍

Q3 Medicine
G. Prabhu
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引用次数: 0

摘要

读者在斯里拉塔的《这种孩子:残疾的故事》海绿色的封面上徘徊,沉思。在一个模糊的方格网格的衬托下,让人联想到手写文字的标题排版成为了一个引人注目的封面图片:两个字母(“h”和“c”)朝相反的方向翻转。就在读者沉浸在字母叛逆的时刻时,“残疾”周围的引号开始让人心烦意乱。它唤起了什么?与任何运动一样,全心全意地接受共享术语成为倡导的关键起点,残疾人权利已经这样做了几十年。尽管如此,在决定接受标点符号的试探性、话语性内涵之后,读者现在不得不与作者的问题作斗争。虽然封面上只有一个作者的名字,但这本书展示了一本经过编辑的书的所有品质——除了作者的精选片段,这本书的大部分内容都是来自其他作家的贡献或逐字采访。我们如何理解多个故事和多个作者(正如前言所说,“隐藏在众目睽睽之下的整个人类宇宙的故事”)合并成一个作者的一个故事(带引号)?这可能会告诉我们关于残疾叙事的道德考虑,特别是在接触到更多读者的时候?
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Living and narrating disabilities
The reader lingers, broods over the sea-green cover of K Srilata’s This Kind of Child: The ‘Disability’ Story. Against a faint grid of squares, the title’s typography that evokes handwritten text doubles up as a striking cover image: two alphabets (‘h’ and ‘c’) are flipped in the opposite direction. Even as the reader takes in that moment of alphabetrebellion, the quotation marks around “disability” start to niggle. What is it evoking? As with any movement, the wholehearted embracing of shared terminology becomes a crucial starting point for advocacy, and disability rights has done so for decades. Nonetheless, having decided to accept the tentative, discursive connotations of punctuation, the reader now has to contend with the question of authorship. Although featuring the name of a single author on the cover, the work shows all the qualities of an edited volume — apart from select fragments by the author, the bulk of the book comprises of contributions from other writers or verbatim interviews. How do we make sense of multiple stories and multiple authors (“the stories of an entire universe of human hidden in plain sight” as claims the Preface) merging into one story (with quotation marks) by one author? What might this tell us about ethical considerations around disability narratives, especially if reaching out to a larger readership?
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来源期刊
Indian journal of medical ethics
Indian journal of medical ethics Medicine-Medicine (all)
CiteScore
2.40
自引率
0.00%
发文量
96
期刊介绍: The Indian Journal of Medical Ethics (formerly Issues in Medical Ethics) is a platform for discussion on health care ethics with special reference to the problems of developing countries like India. It hopes to involve all cadres of, and beneficiaries from, this system, and strengthen the hands of those with ethical values and concern for the under-privileged. The journal is owned and published by the Forum for Medical Ethics Society, a not-for-profit, voluntary organisation. The FMES was born out of an effort by a group of concerned doctors to focus attention on the need for ethical norms and practices in health care.
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