{"title":"生活和叙述障碍","authors":"G. Prabhu","doi":"10.20529/ijme.2023.034","DOIUrl":null,"url":null,"abstract":"The reader lingers, broods over the sea-green cover of K Srilata’s This Kind of Child: The ‘Disability’ Story. Against a faint grid of squares, the title’s typography that evokes handwritten text doubles up as a striking cover image: two alphabets (‘h’ and ‘c’) are flipped in the opposite direction. Even as the reader takes in that moment of alphabetrebellion, the quotation marks around “disability” start to niggle. What is it evoking? As with any movement, the wholehearted embracing of shared terminology becomes a crucial starting point for advocacy, and disability rights has done so for decades. Nonetheless, having decided to accept the tentative, discursive connotations of punctuation, the reader now has to contend with the question of authorship. Although featuring the name of a single author on the cover, the work shows all the qualities of an edited volume — apart from select fragments by the author, the bulk of the book comprises of contributions from other writers or verbatim interviews. How do we make sense of multiple stories and multiple authors (“the stories of an entire universe of human hidden in plain sight” as claims the Preface) merging into one story (with quotation marks) by one author? What might this tell us about ethical considerations around disability narratives, especially if reaching out to a larger readership?","PeriodicalId":35523,"journal":{"name":"Indian journal of medical ethics","volume":null,"pages":null},"PeriodicalIF":0.0000,"publicationDate":"2023-05-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Living and narrating disabilities\",\"authors\":\"G. Prabhu\",\"doi\":\"10.20529/ijme.2023.034\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"The reader lingers, broods over the sea-green cover of K Srilata’s This Kind of Child: The ‘Disability’ Story. Against a faint grid of squares, the title’s typography that evokes handwritten text doubles up as a striking cover image: two alphabets (‘h’ and ‘c’) are flipped in the opposite direction. Even as the reader takes in that moment of alphabetrebellion, the quotation marks around “disability” start to niggle. What is it evoking? As with any movement, the wholehearted embracing of shared terminology becomes a crucial starting point for advocacy, and disability rights has done so for decades. Nonetheless, having decided to accept the tentative, discursive connotations of punctuation, the reader now has to contend with the question of authorship. Although featuring the name of a single author on the cover, the work shows all the qualities of an edited volume — apart from select fragments by the author, the bulk of the book comprises of contributions from other writers or verbatim interviews. How do we make sense of multiple stories and multiple authors (“the stories of an entire universe of human hidden in plain sight” as claims the Preface) merging into one story (with quotation marks) by one author? What might this tell us about ethical considerations around disability narratives, especially if reaching out to a larger readership?\",\"PeriodicalId\":35523,\"journal\":{\"name\":\"Indian journal of medical ethics\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2023-05-24\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Indian journal of medical ethics\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://doi.org/10.20529/ijme.2023.034\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"Medicine\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Indian journal of medical ethics","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.20529/ijme.2023.034","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"Medicine","Score":null,"Total":0}
The reader lingers, broods over the sea-green cover of K Srilata’s This Kind of Child: The ‘Disability’ Story. Against a faint grid of squares, the title’s typography that evokes handwritten text doubles up as a striking cover image: two alphabets (‘h’ and ‘c’) are flipped in the opposite direction. Even as the reader takes in that moment of alphabetrebellion, the quotation marks around “disability” start to niggle. What is it evoking? As with any movement, the wholehearted embracing of shared terminology becomes a crucial starting point for advocacy, and disability rights has done so for decades. Nonetheless, having decided to accept the tentative, discursive connotations of punctuation, the reader now has to contend with the question of authorship. Although featuring the name of a single author on the cover, the work shows all the qualities of an edited volume — apart from select fragments by the author, the bulk of the book comprises of contributions from other writers or verbatim interviews. How do we make sense of multiple stories and multiple authors (“the stories of an entire universe of human hidden in plain sight” as claims the Preface) merging into one story (with quotation marks) by one author? What might this tell us about ethical considerations around disability narratives, especially if reaching out to a larger readership?
期刊介绍:
The Indian Journal of Medical Ethics (formerly Issues in Medical Ethics) is a platform for discussion on health care ethics with special reference to the problems of developing countries like India. It hopes to involve all cadres of, and beneficiaries from, this system, and strengthen the hands of those with ethical values and concern for the under-privileged. The journal is owned and published by the Forum for Medical Ethics Society, a not-for-profit, voluntary organisation. The FMES was born out of an effort by a group of concerned doctors to focus attention on the need for ethical norms and practices in health care.