Rachel Collins, E. Dawson, C. Pentecost, S. Stapley, C. Quinn, Catherine Charlwood, L. Allan, C. Victor, L. Clare
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Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort
We explored carers’ experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies from carers participating in a British longitudinal cohort study. Semi-structured interview data were compared to accounts from previous interviews conducted during the first 18 months of the pandemic. There was indication of some return to pre-pandemic lifestyles, but without appropriate support, carers risked reaching crisis point. Evidence points to a requirement for assessment and management of support needs to ensure well-being and sustainable dementia caregiving.