文化谦逊:在多医院随机对照试验中招募故意自残患者的合作方法

S. Brownhill, G. Stevens, T. E. Hammond, Richard Baldacchino, Rose Maposa, Bonyface Makoni, Aviva Sheb'a, Jagadeesh Andepalli, A. Kotak, Olav D'Souza, Azadeh Atashnama, Anish Thayil, Alison L Jones
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摘要

“SMS SOS”故意自残(DSH)善后护理研究于2017年10月至2020年12月在澳大利亚西悉尼三家大型公立医院进行。在这项随机对照试验(RCT)中,观察到关键利益相关者之间的知识交流及其“文化”观点(例如,心理健康临床医生,生活经验心理健康顾问-患者代表,行政官员和研究人员)对于有效招募经历DSH的患者至关重要。利用沟通矩阵最大化文化群体内部和文化群体之间的知识交流。这一过程可转移到其他涉及多种“文化”的试验中,旨在促进早期识别更广泛的团队优势,积极管理可能阻碍患者招募的紧急问题,并最大限度地利用资金和人力资源。方法:采用描述性研究,选取代表不同文化的团队成员作为样本。定性数据是从“知道和告诉”矩阵中得出的。通过一个迭代过程,生成了主题,这些主题包含了团队成员需要了解的内容,并告诉他们的同事有关研究的内容。结果:影响临床医生参与研究的因素包括临床医生工作量、临床医生招募患者的动机/承诺/信心水平、临床医生与患者的参与、对研究参与的感知和期望、跨文化交流、临床医生的培训和支持。这次多学科会诊的结果为知识交流和教育简报/定向模块的发展提供了一个复合模型,该模型明确了团队成员的角色和责任,以促进小组成员的参与并提高患者的招募。结论:大型研究的多学科团队成员有责任在规划和设计阶段早期采用类似的“知识交流”策略。采用这种战略有可能减轻项目时间表延迟的风险,改善项目成果,并确保研究经费的有效利用,特别是在临床环境中新成立的研究团队和新成员正式研究合作的情况下。关键词:文化谦逊;故意自我伤害;参与;参与者招募;参与式研究;随机对照试验
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Cultural Humility: A Collaborative Approach to Recruiting Patients with Deliberate Self-Harm into a Multi-Hospital Randomized Controlled Trial
Objectives: The ‘SMS SOS’ Deliberate Self-Harm (DSH) Aftercare Study was conducted in Western Sydney, Australia (October 2017 to December 2020) across three large public hospitals. During this randomized controlled trial (RCT), it was observed that knowledge exchange between key stakeholders and their ‘cultural’ perspectives (for example, Mental Health Clinicians, Lived Experience Mental Health Consultants—Patient Representatives, Administrative Officers, and Researchers) was essential to effective recruitment of patients experiencing DSH. Knowledge exchange within and between cultural groups was maximised and assessed using a communication matrix. This process, transferable to other trials engaging multiple ‘cultures’, aimed to promote the early identification of wider-team strengths as well as active management of emergent issues that would otherwise impede patient recruitment, and to maximise funding and human resources. Methods: A descriptive study was conducted with a convenience sample of team members who represented different cultures in the study. Qualitative data were elicited from a ‘know and tell’ matrix. Through an iterative process, themes were generated that encapsulated what team members needed to know from and tell to their colleagues concerning the study. Results: Factors that impacted participation in the study included clinician workload, the level of motivation/ commitment/confidence of clinicians to recruit patients, clinician-patient engagement, perception and expectations of study involvement, inter-cultural communication, and clinician training and support. The findings of this multidisciplinary consultation informed a composite model of knowledge exchange and the development of educational briefing/ orientation modules that make explicit team members’ roles and responsibilities to foster group member participation and enhance patient recruitment. Conclusions: It is incumbent upon multidisciplinary team members of large-scale studies to adopt a similar ‘knowledge exchange’ strategy early in the planning and design stage. Adoption of such a strategy has the potential to mitigate risk of delay in project timelines, improve project outcomes, and ensure the efficient use of research funding, particularly in newly established research teams within clinical settings and with members newer to formal research collaborations. Keywords: cultural humility; deliberate self-harm; engagement; participant recruitment; participatory research; randomized controlled trial
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