为患有亨廷顿舞蹈症的夫妇举办的"抱紧我"项目。

IF 2.1 Q3 NEUROSCIENCES
Tara M Petzke, M. Rodríguez-Girondo, L. B. van der Meer
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引用次数: 0

摘要

背景亨廷顿舞蹈症(HD)的阳性预测性基因检测可能会改变携带者及其伴侣的生活,导致幸福感下降,并增加分居和离婚的风险。“紧紧抓住我”计划(HmT)基于以情感为中心的夫妻治疗,旨在通过针对依恋需求来加强夫妻关系。目的本研究调查HmT计划是否有助于夫妻加强关系,作为对疾病将在许多方面影响生活的未来的投资。方法采用三个不同长度基线的多基线设计,纳入15对症状前HD携带者及其伴侣。在连续的三组中,夫妇每周四次接受干预(8次HmT计划的改编版),并在19周的研究期间完成自我报告问卷(17次测量)。在基线时评估依恋风格,在基线时和随访结束时评估恢复力,同时每周测量关系满意度和幸福感。将多层次模型应用于数据。结果在整个学习过程中,幸福感和人际关系满意度显著提高;然而,韧性却没有。此外,所有三种结果测量都受到依恋风格的调节,依恋更安全的个体表现出更好的结果。结论Hmt改善了面临HD的夫妇的幸福感和关系满意度。由于这些改进和高患者可接受率,该项目可能成为HD护理的标准化程序。该计划可以适用于其他人群,例如面临其他遗传神经疾病的夫妇。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
The Hold me Tight Program for Couples Facing Huntington's Disease.
BACKGROUND A positive predictive genetic test for Huntington's disease (HD) can be a life-changing event for both carriers and their partners, leading to lower wellbeing and increasing the risk for separation and divorce. The 'Hold me Tight' program (HmT), based on emotionally focused couples' therapy, aims at strengthening the couple bond by targeting attachment needs. OBJECTIVE This study investigates whether the HmT program helps couples strengthen their relationship, as an investment in a future where the disease will affect life in many ways. METHODS In a multiple baseline design using three baselines of varying length, 15 couples of presymptomatic HD-carriers and their partners were included. In three consecutive groups, couples underwent the intervention (an adapted version of the 8-session HmT program) in four weekly sessions and completed self-report questionnaires throughout the study period of 19 weeks (17 measurements). Attachment style was assessed at baseline, resilience at baseline and at the end of the follow-up, while relationship satisfaction and wellbeing were measured weekly. A multi-level model was applied to the data. RESULTS Over the course of the study, wellbeing and relationship satisfaction significantly improved; resilience, however, did not. Furthermore, all three outcome measures were moderated by attachment style, with more securely attached individuals showing better outcomes. CONCLUSION HmT improved wellbeing and relationship satisfaction of couples facing HD. Due to these improvements and high patient acceptability rates, this program could become a standardized procedure in HD care. The program could be adapted for other populations, e.g., couples facing other genetic neurological disorders.
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来源期刊
CiteScore
4.80
自引率
9.70%
发文量
60
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