{"title":"无知和基于证据的全球卫生的悖论:印度百万死亡研究中的死亡率统计案例","authors":"Erik Aarden","doi":"10.1080/09505431.2022.2137790","DOIUrl":null,"url":null,"abstract":"ABSTRACT Quantitative evidence and metrics play a central role in contemporary global health. Mortality statistics, for example, are considered essential for improving health in the global South. Yet, many observers lament that reliable cause of death data is not available for many low- and middle-income countries. The Million Death Study (MDS) in India forms an effort to address this issue, seeking to reduce ignorance around mortality by generating representative statistics by combining an existing, representative demographic sample with an innovative diagnostic method called verbal autopsy. Yet, ignorance is more than the absence of reliable mortality statistics in this study. Social science perspectives on institutionalized ignorance can help unpack how certain paradoxes of evidence-based global health manifest through three different articulations of ignorance in the MDS. First, the study’s simultaneously national and global ambitions intersect in arguments that present ignorance as legitimation for the study. Second, ignorance is presented as instrumental in balancing the need for expertise with the risk of bias in diagnosing causes of death. Third, MDS researchers dismiss remaining ignorance or uncertainty about diagnoses, by claiming it is relative compared to the ‘actionability’ of study results for improving public health. In exploring these various manifestations of institutionalized ignorance, several paradoxes of the MDS as an evidence-based global health project become visible. By exploring these paradoxes, this analysis suggests that studies of institutionalized ignorance can provide novel perspectives on how deliberate articulations and mobilization of ignorance helps constitute evidence-based global health.","PeriodicalId":47064,"journal":{"name":"Science As Culture","volume":"31 1","pages":"433 - 454"},"PeriodicalIF":2.5000,"publicationDate":"2022-10-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"2","resultStr":"{\"title\":\"Ignorance and the paradoxes of evidence-based global health: the case of mortality statistics in India’s million death study\",\"authors\":\"Erik Aarden\",\"doi\":\"10.1080/09505431.2022.2137790\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"ABSTRACT Quantitative evidence and metrics play a central role in contemporary global health. Mortality statistics, for example, are considered essential for improving health in the global South. Yet, many observers lament that reliable cause of death data is not available for many low- and middle-income countries. The Million Death Study (MDS) in India forms an effort to address this issue, seeking to reduce ignorance around mortality by generating representative statistics by combining an existing, representative demographic sample with an innovative diagnostic method called verbal autopsy. Yet, ignorance is more than the absence of reliable mortality statistics in this study. Social science perspectives on institutionalized ignorance can help unpack how certain paradoxes of evidence-based global health manifest through three different articulations of ignorance in the MDS. First, the study’s simultaneously national and global ambitions intersect in arguments that present ignorance as legitimation for the study. Second, ignorance is presented as instrumental in balancing the need for expertise with the risk of bias in diagnosing causes of death. Third, MDS researchers dismiss remaining ignorance or uncertainty about diagnoses, by claiming it is relative compared to the ‘actionability’ of study results for improving public health. In exploring these various manifestations of institutionalized ignorance, several paradoxes of the MDS as an evidence-based global health project become visible. By exploring these paradoxes, this analysis suggests that studies of institutionalized ignorance can provide novel perspectives on how deliberate articulations and mobilization of ignorance helps constitute evidence-based global health.\",\"PeriodicalId\":47064,\"journal\":{\"name\":\"Science As Culture\",\"volume\":\"31 1\",\"pages\":\"433 - 454\"},\"PeriodicalIF\":2.5000,\"publicationDate\":\"2022-10-02\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"2\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Science As Culture\",\"FirstCategoryId\":\"98\",\"ListUrlMain\":\"https://doi.org/10.1080/09505431.2022.2137790\",\"RegionNum\":3,\"RegionCategory\":\"哲学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"CULTURAL STUDIES\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Science As Culture","FirstCategoryId":"98","ListUrlMain":"https://doi.org/10.1080/09505431.2022.2137790","RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"CULTURAL STUDIES","Score":null,"Total":0}
Ignorance and the paradoxes of evidence-based global health: the case of mortality statistics in India’s million death study
ABSTRACT Quantitative evidence and metrics play a central role in contemporary global health. Mortality statistics, for example, are considered essential for improving health in the global South. Yet, many observers lament that reliable cause of death data is not available for many low- and middle-income countries. The Million Death Study (MDS) in India forms an effort to address this issue, seeking to reduce ignorance around mortality by generating representative statistics by combining an existing, representative demographic sample with an innovative diagnostic method called verbal autopsy. Yet, ignorance is more than the absence of reliable mortality statistics in this study. Social science perspectives on institutionalized ignorance can help unpack how certain paradoxes of evidence-based global health manifest through three different articulations of ignorance in the MDS. First, the study’s simultaneously national and global ambitions intersect in arguments that present ignorance as legitimation for the study. Second, ignorance is presented as instrumental in balancing the need for expertise with the risk of bias in diagnosing causes of death. Third, MDS researchers dismiss remaining ignorance or uncertainty about diagnoses, by claiming it is relative compared to the ‘actionability’ of study results for improving public health. In exploring these various manifestations of institutionalized ignorance, several paradoxes of the MDS as an evidence-based global health project become visible. By exploring these paradoxes, this analysis suggests that studies of institutionalized ignorance can provide novel perspectives on how deliberate articulations and mobilization of ignorance helps constitute evidence-based global health.
期刊介绍:
Our culture is a scientific one, defining what is natural and what is rational. Its values can be seen in what are sought out as facts and made as artefacts, what are designed as processes and products, and what are forged as weapons and filmed as wonders. In our daily experience, power is exercised through expertise, e.g. in science, technology and medicine. Science as Culture explores how all these shape the values which contend for influence over the wider society. Science mediates our cultural experience. It increasingly defines what it is to be a person, through genetics, medicine and information technology. Its values get embodied and naturalized in concepts, techniques, research priorities, gadgets and advertising. Many films, artworks and novels express popular concerns about these developments. In a society where icons of progress are drawn from science, technology and medicine, they are either celebrated or demonised. Often their progress is feared as ’unnatural’, while their critics are labelled ’irrational’. Public concerns are rebuffed by ostensibly value-neutral experts and positivist polemics. Yet the culture of science is open to study like any other culture. Cultural studies analyses the role of expertise throughout society. Many journals address the history, philosophy and social studies of science, its popularisation, and the public understanding of society.