Mesothelioma survivorship: challenges in delivering quality care

ABSTRACT Introduction: Mesothelioma is one of the only malignancies that has a direct correlation to asbestos exposure. Utilizing electron microscopy, asbestos fibers can be ascertained in the lungs of indviduals who have been exposed; through these means, approximately 80% of mesothelioma cases can be linked to asbestos exposure. Areas covered: The quality of care for mesothelioma survivors has yet to result in national guidelines, and there is a dearth of literature on the lived experience of the mesothelioma patient. This article will explore the challenges unique to mesothelioma, transitioning to long-term care, and the benefits of support network engagement. Expert commentary: Individuals diagnosed with mesothelioma are often challenged with having to navigate their post-active treatment care on their own. Complicated by the lack of support networks and clear guidelines, this results in poor emotional health. As treatments for mesothelioma and other cancers continue to be based on druggable targets rather than disease specific treatment, survivorship will need to redefined as those who are surviving a particular treatment rather than those surviving a mesothelioma diagnosis.