Viviana Fusetti, Martina Angi, Augusto T Caraceni, Lorenza Di Guardo, Enrico Regalia, Marco Bosisio, Silvia Lo Dico, Alessandra Pigni, Cinzia Brunelli, Maura Lusignani
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Palliative Care Nursing Case Management in Young Adults With Advanced Rare Cancer: Case Discussion of a Multidisciplinary Approach.
This case aims to identify the elements of care continuity that are lacking in young adult patients with advanced rare cancer, suggesting ways to enhance continuity of care through nurse case manager/management (NCM) interventions and describing their impact on the emotional burden of patients and their families.
Comprehensive cancer center.
The dyadic care alliance with the NCM can alleviate disease burden, fostering trust in the team and adherence to care advice, thus reducing the patient's distress. The NCM can be an efficient option to advocate for patient needs on the multidisciplinary team, addressing practical issues and the unmet needs of patients and their caregivers, and facilitating referrals to other professionals. The study also shows that caring for young adults with advanced rare cancers should include mindful evaluation of their significant others.
期刊介绍:
Professional Case Management: The Leader in Evidence-Based Practice is a peer-reviewed, contemporary journal that crosses all case management settings. The Journal features best practices and industry benchmarks for the professional case manager and also features hands-on information for case managers new to the specialty. Articles focus on the coordination of services, management of payer issues, population- and disease-specific aspects of patient care, efficient use of resources, improving the quality of care/patient safety, data and outcomes analysis, and patient advocacy. The Journal provides practical, hands-on information for day-to-day activities, as well as cutting-edge research.