Towards truly 'idiopathic' pulmonary fibrosis.

faced by other family members, mostly their children. This response emphasizes the great responsibility placed upon the ILD community to prepare for the next generation of ILD patients. Data suggest that in many cases these will be the siblings and children of our current patients. 10,11 Despite this, less than half of the pulmonologists reported that their patient ’ s children should be informed of their potential risk. Most responding pulmonologists appear to have direct access to genetic testing, with a third advising that lack of access and cost were barriers. The finding that most pulmonologists provide genetic information and felt able to answer all their patient ’ s questions, but at the same time demand more information and education, suggests that there is also a knowledge/experience gap. acknowledge the limitations of their study, which was in In that the of in are the uptake of genetic a clear from and patients is and will be highly The risk of genetic an who is to have is the of is It is pulmonologists, whose has traditionally not the where has may feel uncomfortable or will probably remain in