{"title":"隐私和基因社区。","authors":"Marisa A Leib-Neri, Anya E R Prince","doi":"10.1080/15265161.2022.2075972","DOIUrl":null,"url":null,"abstract":"Aaronson, S. 2013. Quantum computing since democritus. Cambridge: Cambridge University Press. Bedeker, A., M. Nichols, T. Allie, T. Tamuhla, P. van Heusden, O. Olorunsogbon, and N. Tiffin. 2022. A framework for the promotion of ethical benefit sharing in health research. BMJ Global Health 7 (2):e008096. doi:10. 1136/bmjgh-2021-008096. Ferryman, K., and M. Pitcan. 2018. Fairness in precision medicine. New York: Data & Society. Kostick-Quenet, K.,. K. D. Mandl, T. Minssen, I. G. Cohen, U. Gasser, I. Kohane, and A. L. McGuire. 2022. How NFTs could transform health information exchange. 375 (6580):500–2. doi:10.1126/science.abm2004. Nash, J. C. 2004. From lavender to purple: Privacy, black women, and feminist legal theory. Cardozo Women’s Law Journal 11:303. Nissenbaum, H. 2004. Privacy as contextual integrity. Washington Law Review 79:41. Perrier, E. 2021. Ethical quantum computing: A roadmap. arXiv:2102.00759 [quant-ph]. Pyrrho, M., L. Cambraia, and V. F. de Vasconcelos. 2022. Privacy and health practices in the digital age. The American Journal of Bioethics 22 (7):50–59. doi:10.1080/ 15265161.2022.2040648. Scheibner, J., J. L. Raisaro, J. R. Troncoso-Pastoriza, M. Ienca, J. Fellay, E. Vayena, and J.-P. Hubaux. 2021. Revolutionizing medical data sharing using advanced privacy-enhancing technologies: Technical, legal, and ethical synthesis. Journal of Medical Internet Research 23 (2): e25120. doi:10.2196/25120. Tsosie, K. S., K. Fox, and J. M. Yracheta. 2021. Genomics data: The broken promise is to Indigenous people. Nature 591 (7851):529. doi:10.1038/d41586-021-00758-w. Wang, T., L. Antonacci-Fulton, K. Howe, H. A. Lawson, J. K. Lucas, A. M. Phillippy, A. B. Popejoy, M. Asri, C. Carson, M. J. P. Chaisson, et al. 2022. The Human Pangenome Project: A global resource to map genomic diversity. Nature 604 (7906):437–446. doi:10.1038/s41586022-04601-8.","PeriodicalId":145777,"journal":{"name":"The American journal of bioethics : AJOB","volume":" ","pages":"70-72"},"PeriodicalIF":0.0000,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"2","resultStr":"{\"title\":\"Privacy and the Genetic Community.\",\"authors\":\"Marisa A Leib-Neri, Anya E R Prince\",\"doi\":\"10.1080/15265161.2022.2075972\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"Aaronson, S. 2013. Quantum computing since democritus. Cambridge: Cambridge University Press. Bedeker, A., M. Nichols, T. Allie, T. Tamuhla, P. van Heusden, O. Olorunsogbon, and N. Tiffin. 2022. A framework for the promotion of ethical benefit sharing in health research. BMJ Global Health 7 (2):e008096. doi:10. 1136/bmjgh-2021-008096. Ferryman, K., and M. Pitcan. 2018. Fairness in precision medicine. New York: Data & Society. Kostick-Quenet, K.,. K. D. Mandl, T. Minssen, I. G. Cohen, U. Gasser, I. Kohane, and A. L. McGuire. 2022. How NFTs could transform health information exchange. 375 (6580):500–2. doi:10.1126/science.abm2004. Nash, J. C. 2004. From lavender to purple: Privacy, black women, and feminist legal theory. Cardozo Women’s Law Journal 11:303. Nissenbaum, H. 2004. Privacy as contextual integrity. Washington Law Review 79:41. Perrier, E. 2021. Ethical quantum computing: A roadmap. arXiv:2102.00759 [quant-ph]. Pyrrho, M., L. Cambraia, and V. F. de Vasconcelos. 2022. Privacy and health practices in the digital age. The American Journal of Bioethics 22 (7):50–59. doi:10.1080/ 15265161.2022.2040648. Scheibner, J., J. L. Raisaro, J. R. Troncoso-Pastoriza, M. Ienca, J. Fellay, E. Vayena, and J.-P. Hubaux. 2021. Revolutionizing medical data sharing using advanced privacy-enhancing technologies: Technical, legal, and ethical synthesis. Journal of Medical Internet Research 23 (2): e25120. doi:10.2196/25120. Tsosie, K. S., K. 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Aaronson, S. 2013. Quantum computing since democritus. Cambridge: Cambridge University Press. Bedeker, A., M. Nichols, T. Allie, T. Tamuhla, P. van Heusden, O. Olorunsogbon, and N. Tiffin. 2022. A framework for the promotion of ethical benefit sharing in health research. BMJ Global Health 7 (2):e008096. doi:10. 1136/bmjgh-2021-008096. Ferryman, K., and M. Pitcan. 2018. Fairness in precision medicine. New York: Data & Society. Kostick-Quenet, K.,. K. D. Mandl, T. Minssen, I. G. Cohen, U. Gasser, I. Kohane, and A. L. McGuire. 2022. How NFTs could transform health information exchange. 375 (6580):500–2. doi:10.1126/science.abm2004. Nash, J. C. 2004. From lavender to purple: Privacy, black women, and feminist legal theory. Cardozo Women’s Law Journal 11:303. Nissenbaum, H. 2004. Privacy as contextual integrity. Washington Law Review 79:41. Perrier, E. 2021. Ethical quantum computing: A roadmap. arXiv:2102.00759 [quant-ph]. Pyrrho, M., L. Cambraia, and V. F. de Vasconcelos. 2022. Privacy and health practices in the digital age. The American Journal of Bioethics 22 (7):50–59. doi:10.1080/ 15265161.2022.2040648. Scheibner, J., J. L. Raisaro, J. R. Troncoso-Pastoriza, M. Ienca, J. Fellay, E. Vayena, and J.-P. Hubaux. 2021. Revolutionizing medical data sharing using advanced privacy-enhancing technologies: Technical, legal, and ethical synthesis. Journal of Medical Internet Research 23 (2): e25120. doi:10.2196/25120. Tsosie, K. S., K. Fox, and J. M. Yracheta. 2021. Genomics data: The broken promise is to Indigenous people. Nature 591 (7851):529. doi:10.1038/d41586-021-00758-w. Wang, T., L. Antonacci-Fulton, K. Howe, H. A. Lawson, J. K. Lucas, A. M. Phillippy, A. B. Popejoy, M. Asri, C. Carson, M. J. P. Chaisson, et al. 2022. The Human Pangenome Project: A global resource to map genomic diversity. Nature 604 (7906):437–446. doi:10.1038/s41586022-04601-8.
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