一种高效的重症血友病a- a患者门诊服务模式介绍一种新颖的家庭护理模式。

American journal of blood research Pub Date : 2021-10-15 eCollection Date: 2021-01-01
Majid Davari, Abolfazl Sadeghi, Zahra Gharibnaseri, Roya Ravanbod, Peyman Eshghi, Marziyeh Zargaran
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引用次数: 0

摘要

血友病A (HA)是一种遗传性凝血因子缺乏的疾病。仅根据患者出血感觉开始治疗导致63.6%以上的关节出血诊断错误。本研究旨在为严重血友病a (PWSHA)患者设计一种实用的门诊服务模式。方法:本研究分三步进行。在步骤1中,对德黑兰PWSHA的当前服务模式进行了评估。第二步,根据存在的缺口及其需求,提出了一个流动服务模型。第三步,从临床医生、PWSHA和医疗政策制定者的角度评估模型的可接受性。结果:2018年德黑兰共有PWSHA 1660例。伊朗人平均使用因子VIII (FVIII)为44814 IU。2018年,德黑兰FVIII的年度预算为10,627,320美元。我们在德黑兰的五个护理中心提出了一个家庭护理模式。建议每个护理中心配备10名护理人员和3名血液学家,每天提供所有服务。提取的数据表明,每个中心每天的总服务需求为39。各组问卷调查结果均为支持与配合。结论:目前PWSHA的服务模式存在明显的经济和临床缺陷。实施该模型可显著提高PWSHA出血管理的效率。大多数PWSHA、医疗保健管理人员和临床医生对提出的模型感到满意。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

An efficient and effective ambulatory service model for severe hemophilia-A patients; an introduction to a novel home care model.

An efficient and effective ambulatory service model for severe hemophilia-A patients; an introduction to a novel home care model.

Introduction: Hemophilia A (HA) is an inherited deficiency in blood coagulation factors. Starting the treatment based merely on patients' hemorrhage feelings results in more than 63.6% mistakes in joint bleeding diagnosis. This study aimed to design a useful ambulatory service model for Patients With Severe Hemophilia A (PWSHA).

Methods: This study was done in 3 steps. In step-I, the current service model to PWSHA in Tehran was evaluated. In step II, an ambulatory service model was proposed according to the existed gaps and their requirement. In step III, the model's acceptability was assessed from the perspective of clinicians, PWSHA, and healthcare policymakers.

Results: There were 1660 PWSHA in Tehran in 2018. The average use of Factor VIII (FVIII) was 44814 IU in Iran. The yearly budget of FVIII in Tehran was 10,627,320 US$ in 2018. We proposed a home care model with five care centers in Tehran. Ten caregivers and three hematologists for each care center were suggested to cover all services per day. The extracted data indicated that the total service demand would be 39 for each center per day. The results of the questionnaires in all groups were supportive and cooperative.

Conclusion: The current service delivery model to PWSHA has significant economic and clinical defects. Implementing our model can significantly improve the efficiency of bleeding management in PWSHA. Most of the PWSHA, healthcare managers, and clinicians were satisfied with the proposed model.

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American journal of blood research
American journal of blood research MEDICINE, RESEARCH & EXPERIMENTAL-
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