儿童癌症的经历:一种叙事探究

IF 1.2 4区 医学 Q3 NURSING
Megalai Thavakugathasalingam MHSc, Jasna K. Schwind PhD, RN
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引用次数: 0

摘要

目的通过年轻人的故事,更全面地了解儿童癌症对他们生活可能产生的影响。设计与方法采用Connelly和Clandinin的叙事探究法,参与者Noelle在12岁时对她的癌症经历进行了一系列的叙事访谈和创造性的自我表达活动。她的故事通过三维空间的经验(人、地点和时间)进行检验,并使用埃里克森的社会心理发展阶段框架理论镜头进行分析。结果出现了两种重要的叙事模式:身份和关系。虽然癌症对身体的影响得到了成功的治疗,但这种疾病的影响影响了诺艾尔自己的心理社会发展,因为她试图发展与同龄人和家人的关系,同时努力适应她作为癌症患者的新身份。医疗保健专业人员需要有意识地提高他们对青少年患者癌症生活经历的敏感性。更具体地说,有必要对保健专业人员进行进一步教育,使他们了解癌症在癌症发病过程的近期和长期轨迹中对社会心理的影响。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Experience of childhood cancer: A narrative inquiry

Purpose

To more fully understand the possible impact of childhood cancer on a young person's life through their own story.

Design and Methods

Using Connelly and Clandinin's narrative inquiry method, a participant named Noelle was engaged in a series of narrative interviews and a creative self-expression activity about her cancer experience when she was 12. Her story was examined through the three-dimensional space of experience (person, place, and time), and analyzed using Erikson's Psychosocial Stages of Development framework theoretical lens.

Results

Two significant narrative patterns emerged: identity and relationships. Although the physical effects of the cancer were successfully treated, the impact of this disease impacted Noelle's own psychosocial development as she was trying to evolve her relationships with peers and family, while grappling with her new identity as a cancer patient.

Practice Implications

Healthcare professionals need to intentionally increase their sensitivity to adolescent patients' lived experience of cancer. More specifically, there is a need for further education of healthcare professionals on the psychosocial impact of cancer in both the immediate and long-term trajectory of the cancer disease process.

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来源期刊
CiteScore
2.50
自引率
7.70%
发文量
27
审稿时长
>12 weeks
期刊介绍: Linking science and practice by publishing evidence-based information on pediatric nursing and answering the question, ''How might this information affect nursing practice?'' The Journal for Specialists in Pediatric Nursing (JSPN) is the international evidence-based practice journal for nurses who specialize in the care of children and families. JSPN bridges the gap between research and practice by publishing peer-reviewed reliable, clinically relevant, and readily applicable evidence. The journal integrates the best evidence with pediatric nurses'' passion for achieving the best outcomes. The journal values interdisciplinary perspectives and publishes a wide variety of peer-reviewed papers on clinically relevant topics.
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