“似乎利益相关者参与是恼人的‘必须要做的’……”:道德审查能否帮助解决利益相关者参与中的象征性、毒性和剪裁的“3t”?

IF 1.7 4区 哲学 Q2 ETHICS
Abigail Wilkinson, Catherine Slack, Siyabonga Thabethe, Jessica Salzwedel
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引用次数: 6

摘要

伦理指导建议研究人员与利益相关者接触,RECs审查研究是否有这种接触。伦理审查过程可能提供一个独特的机会,以支持利益相关者参与艾滋病毒预防研究的做法。我们对来自12个国家的28位专家进行了访谈,并使用专题分析方法对数据进行了分析。我们发现,参与和审查过程的价值得到了强烈认可。然而,我们确定了3个主要的主题复杂性,即:“象征性”,过程可能是“打勾框”;“毒性”,即做法可能在无意中产生负面后果;以及“裁剪”,即过程需要小心地改变强度。我们就如何在审查过程中解决这些“t”提出建议,以帮助对有意义的利益相关者参与研究进行深思熟虑的审查。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

"<i>It's Almost as if Stakeholder Engagement is the Annoying 'Have-to-do'…</i>": Can Ethics Review Help Address the "3 Ts" of Tokenism, Toxicity, and Tailoring in Stakeholder Engagement?

"It's Almost as if Stakeholder Engagement is the Annoying 'Have-to-do'…": Can Ethics Review Help Address the "3 Ts" of Tokenism, Toxicity, and Tailoring in Stakeholder Engagement?

Ethics guidance recommends that researchers engage stakeholders and that RECs review research for such engagement. The ethics review process may present a unique opportunity to support stakeholder engagement practices for HIV prevention studies. We conducted 28 interviews with experts from 12 countries to explore this issue, and analyzed the data using Thematic Analysis. We found that the value of engagement and review processes was strongly endorsed. However, we identified 3 major thematic complexities, namely: "Tokenism" where processes risk being "tick-box"; "Toxicity", where practices may inadvertently have negative consequences; and "Tailoring", where processes need careful variation in intensity. We make recommendations for how these "Ts" can be addressed during the review process to help contribute to thoughtful review of meaningful stakeholder engagement in research.

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来源期刊
CiteScore
3.50
自引率
7.70%
发文量
30
审稿时长
>12 weeks
期刊介绍: The Journal of Empirical Research on Human Research Ethics (JERHRE) is the only journal in the field of human research ethics dedicated exclusively to empirical research. Empirical knowledge translates ethical principles into procedures appropriate to specific cultures, contexts, and research topics. The journal''s distinguished editorial and advisory board brings a range of expertise and international perspective to provide high-quality double-blind peer-reviewed original articles.
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